Fighting to keep young adults with disabilities out of nursing homes – The Coast Halifax

Mary Burtt’s daughter Laura Osborne was diagnosed with metachromatic leukodystrophy—a rare disease with symptoms of muscle rigidity, inability to walk, seizures and blindness—when she was 16 years old. “We knew it was only going to get worse,” says Burt. Laura Osborne’s disease progressed until she began using a wheelchair, and by the time she was 20 years old she was fully dependent on physical support. Today she lives in a nursing home with seniors.

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