Link discovered between Spinal Muscular Atrophy and liver damage Thursday, 8 August, 2024 University of Aberdeen
We can’t help but wonder how many more steps our daughter, 6, will take, says mother of six-year-old girl with muscle wasting disease that is slowly destroying her mobility Tuesday, 4 June, 2024 Daily Mail
Spinal Muscular Atrophy patients in the UK are ‘let down’ and struggling to access vital treatments Thursday, 30 May, 2024 Sky News
Commentary: Life-changing treatments for my terminal disease may soon be within reach, but here’s why I’m going to hold off Friday, 26 April, 2024 Today
New test to identify Spinal Muscular Atrophy in babies launches in Wessex Friday, 10 November, 2023 ITV News
14-Year-Old Girl with Rare Genetic Disorder Gets to Attend Her First-Ever Concert, Taylor Swift’s ‘Eras Tour’ Thursday, 27 April, 2023 Yahoo News
New Insights into Origins of Spinal Muscular Atrophy — Mirage News Wednesday, 22 March, 2023 Mirage News
NHS to offer ‘world’s most expensive’ £1.8m-a-dose drug to cure baby spinal disease – Daily Mail Friday, 17 March, 2023 Daily Mail
‘Miracle cure’ for spinal disorder rolled out on NHS – but babies still face paralysis – The Mirror Thursday, 16 March, 2023 The Mirror
Living with Spinal Muscular Atrophy: Navigating the emotional pathway of the condition – The Financial Express Tuesday, 28 February, 2023 The Financial Express
Paediatric patient with spinal muscular atrophy to get first gene therapy in BD – The Financial Express Monday, 24 October, 2022 The financial express
Should Treatment for Spinal Muscular Atrophy Be Initiated Earlier? – Neurology Advisor Friday, 14 October, 2022 Neurology Advisor
Roy Hodgson leads Down’s Syndrome Eagles training – Palace For Life Foundation Friday, 14 October, 2022 Neurology Advisor
At a fashion show for people with spinal muscular atrophy, models take back their own stories – STAT Friday, 16 September, 2022 Stat News
Listing breakthrough brings hope for people with spinal condition – The Sydney Morning Herald Monday, 1 August, 2022 The Sidney Morning Herald
University of Oxford: First UK pilot study of newborn screening for spinal muscular atrophy launched in Oxford – India Education Diary Monday, 14 March, 2022 India Education Diary
First UK pilot study of newborn screening for spinal muscular atrophy launched in Oxford – University of Oxford Friday, 11 March, 2022 University of Oxford
Link discovered between Spinal Muscular Atrophy and liver damage Thursday, 8 August, 2024 University of Aberdeen
We can’t help but wonder how many more steps our daughter, 6, will take, says mother of six-year-old girl with muscle wasting disease that is slowly destroying her mobility Tuesday, 4 June, 2024 Daily Mail
