By Disabled People for Disabled People

Leuko Dystrophies

https://au.news.yahoo.com/mother-hopes-sons-life-change-080040762.html

Mother hopes son’s life will ‘change forever’ after breakthrough in neurodegenerative disease H-ABC treatment

Saturday, 22 June, 2024

Yahoo News

https://medicalxpress.com/news/2024-04-strategy-natural-history-leukodystrophies.html#google_vignette

New strategy for assessing natural history of leukodystrophies

Monday, 22 April, 2024

Medical Xpress

https://themighty.com/2018/06/celebrity-dads-who-have-kids-with-disabilities/

20 Celebrity Dads Who Have Kids With Disabilities – The Mighty

Tuesday, 28 March, 2023

The Mighty

https://www.dailyrecord.co.uk/in-your-area/renfrewshire/renfrew-man-hasnt-proper-sleep-28034708

Renfrew man hasn’t had a proper sleep in eight years because of rare genetic disorder – Daily Record

Tuesday, 20 September, 2022

Daily Record

https://www.dailymail.co.uk/femail/article-10964509/Disabled-girl-unique-friendship-golden-retriever.html

Disabled girl has a unique friendship with her golden retriever — Daily Mail

Wednesday, 29 June, 2022

Daily Mail

https://www.theguardian.com/society/2022/feb/04/children-in-england-with-fatal-condition-to-get-worlds-most-expensive-drug

Children in England with fatal condition to get world’s most expensive drug – The Guardian

Friday, 4 February, 2022

The Guardian

https://publications.aap.org/pediatrics/article/148/3/e2021053126/181065/Leukodystrophies-in-Children-Diagnosis-Care-and?autologincheck=redirected

Leukodystrophies in Children: Diagnosis, Care, and Treatment – American Academy of Pediatrics

Sunday, 26 September, 2021

American Academy of Pediatrics

https://disabilityhorizons.com/2021/08/win-free-hire-of-a-mountain-trike-all-terrain-wheelchair-and-200-off-the-purchase/

WIN FREE hire of a Mountain Trike all-terrain wheelchair and £200 off the purchase – Disability Horizons

Sunday, 29 August, 2021

Disability Horizons

https://www.walesonline.co.uk/news/wales-news/touching-tribute-girl-12-little-21285640

Touching tribute from girl, 12, to the little brother she loved so much – Wales Online

Wednesday, 11 August, 2021

Wales Online

https://www.frontiersin.org/journals/cellular-neuroscience/articles/10.3389/fncel.2021.661857/full

Emerging Concepts in Vector Development for Glial Gene Therapy: Implications for Leukodystrophies

Tuesday, 22 June, 2021

Frontiers

https://www.newsandstar.co.uk/news/national/18497454.forgotten-about-disabled-mans-family-told-source-ppe-carers/

‘Forgotten about’ disabled man’s family told to source own PPE for carers – News & Star

Friday, 5 June, 2020

News & Star

https://www.expresshealthcare.in/news/new-breakthrough-in-understanding-cause-of-rare-childhood-brain-disorders-university-of-sheffield-researchers/419516/

New breakthrough in understanding cause of rare childhood brain disorders: University of Sheffield researchers – Express Healthcare

Tuesday, 28 April, 2020

Express HealthCare

https://www.thecoast.ca/halifax/fighting-to-keep-young-adults-with-disabilities-out-of-nursing-homes/Content?oid=21533550

Fighting to keep young adults with disabilities out of nursing homes – The Coast Halifax

Thursday, 25 April, 2019

The Coast Halifax

https://phys.org/news/2019-02-scientists-dual-layered-scaffolding-cellular-nuclei.html

For the first time, scientists ‘see’ dual-layered scaffolding of cellular nuclei – Phys.org

Monday, 11 February, 2019

Phys.org

https://pubs.rsna.org/doi/full/10.1148/rg.2019180081

Adult Leukodystrophies: A Step-by-Step Diagnostic Approach

Tuesday, 8 January, 2019

RSNA Publications Online

https://au.news.yahoo.com/mother-hopes-sons-life-change-080040762.html

Mother hopes son’s life will ‘change forever’ after breakthrough in neurodegenerative disease H-ABC treatment

Saturday, 22 June, 2024

Yahoo News

https://medicalxpress.com/news/2024-04-strategy-natural-history-leukodystrophies.html#google_vignette

New strategy for assessing natural history of leukodystrophies

Monday, 22 April, 2024

Medical Xpress

https://themighty.com/2018/06/celebrity-dads-who-have-kids-with-disabilities/

20 Celebrity Dads Who Have Kids With Disabilities – The Mighty

Tuesday, 28 March, 2023

The Mighty

https://www.dailyrecord.co.uk/in-your-area/renfrewshire/renfrew-man-hasnt-proper-sleep-28034708

Renfrew man hasn’t had a proper sleep in eight years because of rare genetic disorder – Daily Record

Tuesday, 20 September, 2022

Daily Record

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