Great British Bake Off scarier than Paralympics for Hannah Cockroft – Denbighshire Free Press Monday, 16 August, 2021 Denbighshire Freepress
Moray tot with Spinal Muscular Atrophy is superhero – The Northern Scot Friday, 13 August, 2021 The Northern Scot
Little boy with Spinal Muscular Atrophy is a real superhero – Inverness Courier Friday, 13 August, 2021 Inverness Courier
Spinal Muscular Atrophy awareness: Treatment advances offer hope to SMA patients – Firstpost Thursday, 12 August, 2021 Firstpost
7-year-old Bronx boy with Spinal Muscular Atrophy sworn in as NYPD officer for a day – WABC-TV Tuesday, 27 July, 2021 abc 7 NY
7-year-old with Spinal Muscular Atrophy sworn in as NYPD officer for a day Tuesday, 27 July, 2021 EyeWitness News ABC 7
The ‘most expensive drug in the world’, how it works and the devastating disease it treats – The Conversation UK Monday, 19 July, 2021 The Conversation
Sheffield Children’s Hospital: Baby ‘doing OK’ after SMA drug first – BBC News Wednesday, 7 July, 2021 BBC News
Gene therapy gives families hope for babies with spinal muscular atrophy – UNSW Newsroom Monday, 28 June, 2021 University of New South Wales
Because you’re worth it: Parents’ joy as Scots babies become first in UK to get £1.8m life-transforming, hope-giving treatment – The Sunday Post Sunday, 13 June, 2021 The Sunday Post
Baby boy first to get £1.8m treatment on NHS for spinal muscular atrophy – ITV News Wednesday, 2 June, 2021 itvX
Baby boy is first to receive £1.8m treatment for spinal muscular atrophy on NHS – The Guardian Tuesday, 1 June, 2021 The Guardian
Pioneering spinal treatment helping adults with debilitating condition – About Manchester Monday, 17 May, 2021 About Manchester
Spinal muscular atrophy gene therapy coming to NHS – BioNews Monday, 15 March, 2021 Progress Educational Trust
NICE approves gene therapy for spinal muscular atrophy – European Pharmaceutical Review Tuesday, 9 March, 2021 European pharmaceutical review
NHS to use world’s most expensive drug to treat spinal muscular atrophy – The Guardian Monday, 8 March, 2021 The Guardian
Spinal muscular atrophy: NHS to use world’s most expensive drug to treat babies with rare genetic disorder – iNews Monday, 8 March, 2021 i News
Novartis and NHS England reach ‘landmark’ deal for Zolgensma gene therapy for SMA – PMLiVE Monday, 8 March, 2021 PM Live
Link discovered between Spinal Muscular Atrophy and liver damage Thursday, 8 August, 2024 University of Aberdeen
We can’t help but wonder how many more steps our daughter, 6, will take, says mother of six-year-old girl with muscle wasting disease that is slowly destroying her mobility Tuesday, 4 June, 2024 Daily Mail
Spinal Muscular Atrophy patients in the UK are ‘let down’ and struggling to access vital treatments Thursday, 30 May, 2024 Sky News
Commentary: Life-changing treatments for my terminal disease may soon be within reach, but here’s why I’m going to hold off Friday, 26 April, 2024 Today
