Brain Surgery Can’t Stop This 22-Year-old From Spreading Cheer With His ‘Fast And Joyous’ Christmas Car – Good News Network Wednesday, 18 December, 2019 Good News Network
‘I am strong and want to the best I can be’ – London student living with neurofibromatosis – South West Londoner Sunday, 15 December, 2019 South Wesy Londoner
Teenager can walk again thanks to Dutch 3D printed spinal implant – DutchNews.nl Wednesday, 24 July, 2019 Dutch News
Little girl diagnosed with neurofibromatosis aged five ‘never ceases to amaze’ – Daily Echo Wednesday, 12 June, 2019 Daily Echo
Heartbroken mum recalls how six birth marks revealed this little girl had a deadly disorder – Daily Mail Wednesday, 15 May, 2019 Daily Mail
Adam Pearson neurofibromatosis: What is the genetic disorder? Signs and symptoms revealed – Express Sunday, 21 April, 2019 Daily Express
Boy with rare genetic disorder Neurofibromatosis 2, needs your help – Plymouth Live Saturday, 20 April, 2019 Plymouth Live
Inspirational Rachael Reynolds speaks about living with neurofibromatosis – Female First Tuesday, 2 April, 2019 Female First
The total raised will go towards the Nerve Tumours UK – North Wales Chronicle Tuesday, 26 March, 2019 North Wales Chronicle
Open science and data initiative announced for neurofibromatosis – EurekAlert Friday, 14 December, 2018 Eureka Alert
More than just birthmarks: Living with neurofibromatosis – RACGP Saturday, 10 November, 2018 he Royal Australian College of General Practitioners
Woman in DWP benefits row could be paralysed in high-risk operation – Liverpool Echo Sunday, 4 November, 2018 Liverpool Echo
Social worker, 57, who is covered from head to toe in tiny tumours reveals how she’s been refused into swimming pools and asked to move on flights by heartless strangers – Daily Mail Wednesday, 5 September, 2018 Daily Mail
From skydiving in Hawaii to swimming with turtles: Woman, 28, given just five years to live embarks on a worldwide adventure to tick off items on her bucket list – Daily Mail Wednesday, 31 January, 2018 Daily Mail
It’s for charity! The Bachelorette’s Apollo Jackson and Survivor’s Flick Egginton strip down for racy shoot to raise money for neurofibromatosis – Daily Mail Sunday, 12 November, 2017 Daily Mail
‘Nobody would want to marry this face’: Teenager with giant facial tumours dreams of dressing up as a bride but lives as a recluse because of cruel taunts from strangers about her condition – Daily Mail Friday, 29 September, 2017 Daily Mail
Blind and deaf author launches second autobiography – Free Malaysia Today Monday, 20 March, 2017 Free Malaysia Today
The teenage girl overjoyed to have her leg amputated: Rare genetic condition left Tia with one limb THREE times the size of the other and barely able to walk Wednesday, 27 January, 2016 Daily Mail
Heartbreaking reason why ‘Elephant Man’ with biggest ever facial tumour had to leave school Monday, 6 May, 2024 LADbible
‘LIFE CHANGING’ Watch Charmaine’s transformation as doctors remove thousands of ‘bubble tumours’ that engulfed her body Thursday, 18 April, 2024 The Sun
Mom with ‘one-of-a-kind’ condition can finally see her own face again after more than 60 hours of surgery Saturday, 6 April, 2024 Unilad
