Changing Faces urge James Bond franchise to stop facial disfigurements for villians – Herald Scotland Tuesday, 28 September, 2021 The Herald
Scientists inch closer to developing blood test for certain nerve cancers – Philly Voice Friday, 3 September, 2021 Philly Voice
Dad’s pride as inspirational teen son with challenging health conditions wins award for his courage – Lincolnshire Live Friday, 6 August, 2021 Lincolnshire Live
Koselugo: The First Non-Surgical Alternative for Rare Plexiform Neurofibroma – BioSpace Wednesday, 21 July, 2021 BioSpace
Brooklyn Photographer Brings Attention to NF, the “Invisible Disease” – Brooklyn Reader Friday, 25 June, 2021 BK Reader
Oakwood family with neurofibromatosis hopes to spread awareness about the rare disease – SILive.com Friday, 4 June, 2021 Staten Island Live
Mum reveals tiny detail in photo led to daughter’s shock diagnosis – Yahoo News NZ Tuesday, 25 May, 2021 Yahoo! News NZ
Cessnock boy Hamish McClellan and family want to bring Neurofibromatosis ‘out of the shadows’ – Cessnock Advertiser Monday, 24 May, 2021 The Advertiser - Cessnock
Young Warwickshire man speaks out about nerve condition on World Neurofibromatosis Awareness Day – Rugby Observer Monday, 17 May, 2021 The Rugby Observer
Nikkita and her daughters live with NF, here’s what she wishes people knew – The Canberra Times Sunday, 9 May, 2021 The Canberra Times
10 years on: the Essex schoolboy continuing to beat the odds – ITV News Wednesday, 28 April, 2021 itvX
Disabled Edinburgh man’s car smashed as thieves steal his blue badge – Edinburgh Live Tuesday, 13 April, 2021 Edinburgh Live
Drug May Reduce Tumor Volume in Neurofibromatosis – Technology Networks Friday, 15 January, 2021 Technology Networks
IBD sufferer used to be unable to leave the house without having ‘poocidents’ – Daily Mail Sunday, 13 September, 2020 Daily Mail
Technion discovers how to reduce cognitive damage from brain disease – The Jerusalem Post Friday, 4 September, 2020 The Jerusalem Post
5 home working tips for the Covid-19 lockdown and beyond – Disability Horizons Friday, 15 May, 2020 Disability Horizons
Fitness coach Joe Wicks delights 9-year-old Callum with the call on BBC news – Echo Sunday, 26 April, 2020 Basildon Canvey Southend Echo
Meet the woman who embraced neurofibromatosis and became a social media make-up sensation – Extra.ie Sunday, 26 April, 2020 Extra.ie
FDA approves first ever treatment for neurofibromatosis – EurekAlert Monday, 13 April, 2020 Eureka Alert
The Undateables returns in 2020 and producers want people from Coventry – Coventry Telegraph Thursday, 20 February, 2020 Coventry Telegraph
AstraZeneca shares latest insights on rare genetic diseases Wednesday, 2 October, 2024 Korea Biomedical Review
Nurse says she was kicked off Southwest flight for genetic disorder Wednesday, 7 August, 2024 Independent
I noticed a strange change in my son’s eye when he was a baby – it turned out to be the sign of a rare disease Sunday, 30 June, 2024 Daily Mail
HIV drugs ritonavir and lopinavir trialled in people with neurofibromatosis 2 brain tumours Friday, 21 June, 2024 Sky News
