Neurofibromatosis

Category
City
Zipcode/Postcode

The secret I’m hiding under my oversized fashion style – BBC News

Arooj Aftab, 22, is an influencer who is known for her baggy fashion style. But what her…

0448

My Tumour Made Me Trendy – a Newsbeat documentary – BBC News

Fashion influencer Arooj Aftab’s style is baggy fashion. She’s thriving in an industry where looks are key, but…

0784

Woman in DWP benefits row could be paralysed in high-risk operation – Liverpool Echo

A young woman with a rare genetic condition who is in dispute with the Department for Work…

01k

More than just birthmarks: Living with neurofibromatosis – RACGP

Before she had her children, Dr Caroline Phegan, like many of her peers, didn’t know much about…

0738

Brotherly love! Toddler who became one of Britain’s youngest stroke victims at just 19 months old is on the road to recovery…under the watchful eye of his devoted twin – Daily Mail

A brave toddler who became one of Britain’s youngest stroke victims is on the road to recovery…

01.3k

What is neurofibromatosis type 1 (NF1)? – Lancashire Evening Post

Neurofibromatosis type 1 (NF1) is a genetic condition that causes tumours to grow along your nerves. NF1…

01.1k

Social worker, 57, who is covered from head to toe in tiny tumours reveals how she’s been refused into swimming pools and asked to move on flights by heartless strangers – Daily Mail

A woman who is covered from head to toe in tiny tumours reveals how she has been…

01.2k

The perils of living with neurofibromatosis – The Voice Online

A pensioner with a rare skin condition, neurofibromatosis, wants his bulging right buttock to be surgically removed. For…

01.6k

Paediatric brain tumours occur more often in children with common genetic syndrome – Brain Tumour Research

According to a study carried out by the Washington University School of Medicine, the frequency of brain…

01.5k

Milton Keynes celebrates six inspirational young children at special awards ceremony – Milton Keynes Citizen

Six children who have overcome huge personal challenges have been recognised at a special awards ceremony. The…

01.5k

Chicago’s Lighthouses: Shedding light on artists with disabilities – CBS News

Some street art in Chicago is shedding light on the challenges millions of us face every day….

01.6k

What is neurofibromatosis, what causes Adam Pearson’s condition, what are the symptoms and is there a cure? – The Sun

NEUROFIBROMATOSIS affects around one in 3,000 people – with symptoms ranging in severity. Here’s everything you need to…

01.7k

What is neurofibromatosis – Wyandotte Daily

what is neurofibromatosis News: MedisinNo conducted to assess the iPad. in Hispanic adults. Levalbuterol Metered Dose Inhaler. 7gm…

02k

Winchester father pounds the streets inspired by daughter’s condition – Hampshire Chronicle

A WINCHESTER man inspired by his daughter’s condition has raised more than £4,000 by the running the…

02.6k

How an inspirational fundraiser is now focused on herself – Manchester Evening News

Kay Ashton was only nine-year’s-old when she started doing things to help others less fortunate than her. Her…

02.5k

Parents’ agony after their toddler son became Britain’s youngest stroke victim aged just 19 months – The Sun

A DAD has described the terrifying moment his son became Britain’s youngest stroke victim. Phil Kerman, 39, said…

02.9k

Dad diagnoses 19-month-old son’s stroke thanks to TV advert – The Independent

A father heroically saved his 19-month-old son’s life when he realised that the toddler was suffering from…

02.9k

Bransholme dad’s horror as toddler son suffers a stroke – Hull Daily Mail

A dad-of-three has spoken of his horror after his 19-month-old son was rushed to hospital after his…

03k

Why there need to be more autistic characters in children’s books – The Conversation UK

The children’s writer Michael Morpurgo has written a new novel inspired by his autistic grandson, which is…

02.8k

From skydiving in Hawaii to swimming with turtles: Woman, 28, given just five years to live embarks on a worldwide adventure to tick off items on her bucket list – Daily Mail

A terminal cancer sufferer is determined to defy doctors’ five years to live prognosis thanks to her…

03k

Call for ‘scores on the doors’ disability access ratings – BBC News

A “scores on the doors” system should be introduced to rate disabled access for surgeries, shops and restaurants, campaigners have said. About 2,000 people…

02.3k

Mum’s pride at her “tough little cookie” – North Wales Chronicle

AN Anglesey mum has spoken of the bravery of her “tough little cookie” son who is suffering with a rare genetic condition. Nine-year-old Koren…

02.6k

Raising awareness through art – Norfolk Daily News

When her son was just 4 months old, Rachel Mindrup got news no mother wants to hear. Her baby, Henry, had an unpredictable, progressive,…

02.3k

A cluster of mutations in neurofibromatosis is an important risk factor for severe symptoms – The University of Alabama at Birmingham

Research led by Ludwine Messiaen, Ph.D., professor of genetics at the University of Alabama at Birmingham, shows that missense mutations in a cluster…

02.4k

Uber fires driver accused of canceling a ride because of customer’s appearance – WPTZ

Reggie Bibbs was diagnosed with Neurofibromatosis, which causes tumors to form, even on his face. Bibbs says he ordered a ride to take him…

02.4k

Young mum shares heartbreaking video of daughter, 2, in desperate bid to raise money for brain tumour treatment in the US – The Scottish Sun

A YOUNG mum has shared a heartbreaking video of her little girl’s cancer treatment in a race against time to raise £300,000 to…

02.5k

Glasgow families of disabled children face big financial pressures – Evening Times

Glasgow Families of Disabled Children Face Financial Issues GLASGOW has been named as one of the areas in the UK with the highest percentages…

02.4k

Neurofibromatosis, Northeast in Medford receives grant from Harvard Pilgrim – Wicked Local Medford

Harvard Pilgrim Health Care Foundation recently announced that Neurofibromatosis, Northeast in Medford was awarded $500 from the Foundation’s Community Spirit 9/11 Mini-Grant program. Mary…

02.1k

It’s for charity! The Bachelorette’s Apollo Jackson and Survivor’s Flick Egginton strip down for racy shoot to raise money for neurofibromatosis – Daily Mail

Neurofibromatosis Charity gets fan favourites, The Bachelorette’s Apollo Jackson and Australian Survivor’s Felicity ‘Flick’ Egginton to strip down for charity. The genetically-blessed duo, who were friends…

02.6k

Parents face race to raise £300000 in bid to save Poppy’s life – The Southern Reporter

A Hawick soldier and his former partner are in a race against the clock to raise £300,000 needed to save the life of…

02.1k

Chorley mum asks well-wishers to help poorly Jessica celebrate her birthday in style – Lancashire Post

A mother whose daughter has a number of health difficulties is appealing to well-wishers in Chorley to send her birthday cards. Jessica Brown…

02.4k

Sick tot has life turned around thanks to hugs from therapy dog – Scottish Daily Record

A boy with a condition which means tumours can grow at nerve endings anywhere in his body has had his life turned around…

02.4k

4-year-old Ryder gets his wish to go to Disney World – St George News

At 4 months old, Ryder Spears was diagnosed with neurofibromatosis, a genetic disorder that affects almost every organ system in the body. “It develops…

02k

£7k crowdfunding goal of aspiring England wheelchair footballer – Swindon Advertiser

A WHEELCHAIR footballer who aspires to play for his country is attempting to crowdfund £7,000 to raise money for the power chair that…

02.1k

‘Nobody would want to marry this face’: Teenager with giant facial tumours dreams of dressing up as a bride but lives as a recluse because of cruel taunts from strangers about her condition – Daily Mail

A teenage girl revealed she hasn’t left her house in years because she is bullied over her giant facial tumours. Rubi Dulari, from India,…

02.1k

Our evening at the National Diversity Awards – The Voice Online

ROLE MODELS and charities were honoured nationwide at the recent National Diversity Awards (NDAs) ceremony at the breathtaking Liverpool Anglican Cathedral, rewarding Britain’s…

02k

Bridgwater parents of ‘inspiring’ boy in public appeal for charity fundraiser – Somerset Live

The parents of an inspirational child are encouraging everyone to wear their jeans to work and school. As part of a fundraising day ‘Jeans…

02.2k

Rochester boy named national NF Champion while battling genetic disorder – Post Bulletin

Gus Erickson’s super power is making doors open with the wave of a finger. It may sound silly, but the 5-year-old Rochester boy doesn’t…

02.3k

Warden Bay: Mum Cheryl Fenton abseils down tallest building in Portsmouth for son Dylan – Kent Online

A mother abseiled down the tallest structure in Portsmouth to raise money for her son who is recovering from surgery to remove a…

02k

Family’s bid to raise awareness of devastating Neurofibromatosis type one (NF1) condition which has affected their young son – Norfolk Eastern Daily Press

It could be fairly minor and be little more than treating a small sore on the skin. But, in the worst-case scenario, it…

01.9k

Mum of poorly Fiona, 15, says support from Dundonians has been ‘tremendous’ – Evening Telegraph

Fiona Clark, 15, from the Hilltown, was born with neurofibromatosis — a genetic condition which causes tumours to grow along nerves. Usually the tumours…

02.2k

Key Advance in Neurofibromatosis Research Might Result in New Therapies – Genetic Engineering & Biotechnology News

Researchers from the University of Plymouth and Plymouth Hospitals NHS Trust say they have shed light on the role of the normal, cellular…

02k

Derrie Tustin visited Cranham Primary School to talk about neurofibromatosis and raise money for the Neuro Foundation – Worcester News

A MUM with a rare genetic…

02k

‘She could have been saved’ Parents of tragic tot Beth Beattie campaign to raise awareness of rare brain condition – Scottish Daily Record

Public health minister Aileen Campbell has paid…

02k

John Kavanagh launches awareness campaign for Neurofibromatosis (NF) sufferers – Irish Mirror

John Kavanagh today launched a nationwide campaign that celebrates those who live with Neurofibromatosis (NF), a genetic condition that causes tumors to grow…

02k

Turmeric May Be One of Nature’s Gifts for Neurofibromatosis – Newswire

Curcumin is believed to slow neurofibromatosis progression. This condition actually results from the inactivation of the tumor suppressor gene that leads to tumor…

01.9k

Mother of eight-year-old boy with Elephant Man tumour begs other children scared of his appearance to ‘Just come up and say hi’ – Daily Mail

The family of an eight-year-old boy who has a rare tumour growing on his face hope to raise awareness of his illness so…

02.1k

The disease that gets under a family’s skin – Irish Times

Kathleen Buckley with her daughter Anna Buckley and granddaughter Rebecca O’Brien, who…

02k

Colchester seven-year-old has final wish granted after huge public response – East Anglian Daily Times

A little boy who finally lost his battle with cancer will have his final wish fulfilled following a huge public response to his…

02.3k

Brother’s art supports boy battling brain tumors – Lincoln Times-News

Haden Edwards works on a piece of art at his home in…

02.4k

Blind and deaf author launches second autobiography – Free Malaysia Today

PETALING JAYA: Author and motivational speaker Yvonne Foong has released her second book, a direct sequel to her first autobiography which details her…

02.3k

Dying boy, 7, CAN be buried beside tragic mum after well-wishers raise £23,000 to fulfil his final wish – Mirror.co.uk

Filip has been living in Great Ormond Street Hospital since last September…

01.8k

Friends, family and villagers rally to raise funds for little Rocco – Leicester Mercury

Friends, family and the people of Thurmaston will come together at the weekend to help a youngster suffering from a rare condition. Little…

01.9k

Increased cancer incidence, mortality linked to neurofibromatosis type 1 – Healio

These data confirmed the substantial mortality burden associated with neurofibromatosis type 1 (NF1)-specific cancers, which include central nervous system and peripheral nervous tumors….

01.9k

Evenings With Genetics focuses on neurofibromatosis type 1 – Baylor College of Medicine News (press release)

Neurofibromatosis type 1, a disorder characterized by the growth of noncancerous tumors, will be the focus of discussion in a public seminar March…

01.6k

Helping others high on her bucket list – dailytelegraph.com.au

Ms Weihen satisfied one long-held wish to go skydiving with her mum Robyn in Hawaii. That was just before her pre-Christmas surgery and…

01.7k

Aberdeen mum speaks on fears for son, 6, suffering from tumour condition – Aberdeen Evening Express

A mum-of-two today said she fears for her six-year-old son who suffers from a condition that causes tumours to grow on nerves around…

01.6k

Runners race in undergarments to fight tumor disorder neurofibromatosis – News & Observer

Runners race in undergarments to fight tumor disorder neurofibromatosis. Cupid’s Undie Run raises awareness of neurofibromatosis. More than $56,000 has been raised in…

01.5k

Family shares memories of Abigail – Hi-Desert Star

Abigail Snipes had a tough start to her young life as she dealt with illness from the time she was a baby. After…

01.6k

Patient’s Skin Cells Can Hunt down Cancerous Formations – Beacon Transcript

Sadly, the cause of this rapidly progressing cancer is still unknown, but doctors are yet to rule out certain unusual circumstances such as…

01.5k

Teen Battling Cancer Inspires Vikings Stefon Diggs, Adam Thielen – Vikings.com

A.J. is courageously fighting neurofibromatosis, a cancer where tumors develop in the nervous system, including the brain, spinal cord and nerves, and Diggs…

01.4k

Boy with giant eye tumour saved by Facebook plea – Daily Star

A YOUNG boy can have the life-changing operation he so badly needs thanks to a viral Facebook post. By Sarah Buchanan / Published…

01.3k

Hundreds ran in their undies for neurofibromatosis research (PHOTOS) – NJ.com

Cupid’s Undie Run was started in Washington, D.C., in 2010 to raise money for neurofibromatosis (NF), a condition that causes tumors to form…

01.1k

GALLERY: Cupid’s Undie Run 2016 – WCPO

Cupid’s Undie Run kicked off at Mount Adams Pavilion Saturday to raise awareness and fund research of neurofibromatosis through the Children’s Tumor Foundation….

01.2k

Disfigured heroes like Deadpool help people like me fight prejudice – The Guardian (blog)

As someone with neurofibromatosis, a condition that has caused numerous non-cancerous tumours to grow on my face, I’m interested in how comedy deals…

01.2k

Study pinpoints driver, potential target in aggressive pediatric leukemia subtype University of Colorado Anschutz … – EurekAlert (press release)

The enzyme is an early player in a complex web of cellular communication that is also involved in a number of other diseases…

01.1k

Undie runners strip down and sprint through Detroit to fight neurofibromatosis – MLive.com

Weather conditions have been extraordinarily cold the last two years, but half-naked runners keep showing up to fight neurofibromatosis, a genetic disorder of…

01.2k

Physician-researcher struggles with challenging ‘Moonshot’ problem – St. Louis Jewish Light

For the past 25 years, Dr. David Gutmann has devoted his medical and research career to helping individuals with neurofibromatosis (NF), which he…

01.2k

Disability campaigner urges students to take a chance in life – The Argus

Adam’s genetic disorder, called neurofibromatosis type 1, affects the nervous system and as a result cells grow unchecked. Presenting him the award for…

01.3k

Living with Neurofibromatosis – hoping for a smile – WPSD Local 6

“I try to teach my children that you can always fix the outside, but you can never fix the inside, the heart is…

01.2k

Heartbreaking choice for mum of boy with tumours – Evening Telegraph

Diagnosed with neurofibromatosis when he was just over a year old, two of the tumours were located in the nerve system of the…

01.2k

Supporting the Cupid’s Undie Run – WBAL Baltimore

CHILDREN’S TUMOR FOUNDATION THAT NEUROFIBROMATOSIS. SYNDROME? >> NEUROFIBROMATOSIS ACTUALLY HAS THREE SEPARATE SYNDROMES WITHIN ITS TITLE. NEUROFIBROMATOSIS TYPE I, NEUROFIBROMATOSIS TYPE II AND …

01.2k

UAB research explores neurofibromatosis type 1 – News-Medical.net

The UAB Medical Genomics Laboratory has collected DNA and identified a pathogenic mutation in more than 7,800 unrelated neurofibromatosis type 1 patients. All…

01.3k

Princess Megan on the mend – Truro Daily News

Megan has neurofibromatosis – a condition she was diagnosed with when she was a toddler. Neurofibromatosis can affect many parts of the body,…

01.2k

Selain Urip, Ini Orang-orang yang Hidup dengan Neurofibromatosis – Detikcom

Detikcom Jakarta – Urip, warga Tangerang, menjadi perhatian. Pria yang sehari-hari menjual bensin dan membantu mengatur lalu lintas ini mengidap neurofibromatosis, kondisi yang menyebabkan…

01.3k

Ambassador for 2015 Cupid’s Undie Run in Baltimore dies after long battle with neurofibromatosis – ABC2 News

ABC2 News Rowe was named the face of the 2015 run because of her positive attitude while dealing with neurofibromatosis, or NF-1. She was…

01.1k

UAB Researchers Work to Unravel the Complex Genetic Disease Neurofibromatosis Type 1 – Newswise (press release)

The UAB Medical Genomics Laboratory has collected DNA and identified a pathogenic mutation in more than 7,800 unrelated neurofibromatosis type 1 patients. All…

01.3k

Teen with ultra rare tumours has leg amputated after limb swells to three times normal size – Mirror.co.uk

A brave teen has had her leg amputated after rare tumours made it grow to three times its normal size. Tia Leigh suffers…

01.2k

Tia Leigh with NF1 overjoyed to have her leg amputated – Daily Mail

A teenage girl who begged to have her leg amputated after it swelled to three times the size of the other has spoken…

01.2k

Fundraiser at Gateway’s Ramsey Elementary boosts fight against neurofibromatosis – Tribune-Review

A fundraiser benefitting children diagnosed with a rare, incurable disease known as neurofibromatosis will be held Saturday at Ramsey Elementary. “Some people can…

01.4k

UAB researchers work to unravel the complex genetic disease neurofibromatosis type 1 – The Mix

The UAB Medical Genomics Laboratory has collected DNA and identified a pathogenic mutation in more than 7,800 unrelated neurofibromatosis type 1 patients. All…

01.4k

60 Genetic Disorders Cause Skin And Nervous System Problems: Reports – NDTV

“Neurofibromatosis is one of at least 60 genetic diseases called neurocutaneous disorders that involve the skin, central nervous system, and/or peripheral nervous system,”…

01.3k

Teen who begged to have leg amputated since she was EIGHT finally gets her wish – The Sun

The 14-year-old was diagnosed with neurofibromatosis type 1 (NF1) as a baby, which left her right leg hugely swollen, lumpy and seven centimetres…

01.3k

Burton mum raises more than £1800 for charity – Burton Mail

Marnie, who is nine months old, was diagnosed with neurofibromatosis, a genetic condition, at 13 weeks old, and has pale patches over her…

01.3k
Font Resize