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Things Your Doctor Didn’t Tell You About Living with MS – Multiple Sclerosis News Today

Monday, 11 March, 2019

Things Your Doctor Didn’t Tell You About Living with MS – Multiple Sclerosis News Today

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A recent article in The New York Times hit the nail on the head when it comes to describing the world we live in with MS.

But the article isn’t about MS. The Times‘ Tessa Miller writes about Crohn’s disease, a type of inflammatory bowel disorder. Like MS, Crohn’s is an autoimmune disease. Instead of attacking the central nervous system, however, it attacks the body’s digestive system. And Miller’s “Five Things I Wish I’d Known Before My Chronic Illness” mirrors a lot of things I wish I’d known before my MS. I think what she’s written will hit home with you, too.

Following is an outline:

The mental is as hard as the physical

There’s fear of disability and death. There can also be stress over things like paying for medical care or medications. There’s worry about a loss of control over our lives. And there’s the possibility of depression. In the article, psychotherapist Matt Lundquist recommends that a therapist who has experience with chronic illness patients become a member of our healthcare teams.

Your relationships change

You might have to give up a career. Friends, and even a spouse, may disappear. “It’s hard to be a good employee when you need extended time off,” the article says. “It’s hard to be a good friend when you cancel plans last minute. It’s hard to be a good partner or parent when you barely have the energy to get out of bed. No matter how much you try to explain, people expect you to get better already — and when you don’t, they resent you, consciously or not.” Sound familiar?

Read more at: https://multiplesclerosisnewstoday.com/2019/03/08/things-your-doctor-didnt-tell-you-about-living-ms/

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