Seren Hughes’ parents concerned over epilepsy drugs changes – BBC News

The family of a nine-year-old girl with severe epilepsy claim their GP practice phoned to tell them it will no longer be prescribing her usual medication.

Seren Hughes’s father said Machynlleth Health Centre, Powys, informed them they would no longer sign the repeat prescriptions for the medication that reduces her seizures.

Hefin Hughes said it came as a shock as his daughter has had the medication from the surgery for six years.

The health centre has not commented.

But, in a statement, Powys Teaching Health Board said it sincerely hoped issues between the medical practice and the family can be resolved swiftly.

Seren has had complex epilepsy since she was born.

She used to have up to 100 seizures a day but, after surgery in 2016 and further research, specialists found that a cocktail of medication helped control the condition and her quality of life improved.

But on Monday evening her parents had a call that has left them concerned.

Mr Hughes said: “It’s a matter of life and death basically if she gets this medication or not – it helps to stabilise her epilepsy.”

Read more at: https://www.bbc.com/news/uk-wales-47218572

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