Thirty minutes into a Zoom interview about their years-long battle to keep their son Whitney Dafoe alive, Janet Dafoe shoots her husband Ron Davis an anxious glance.
Whitney, 37, suffers from a severe case of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) — an incurable disease that can leave its victims in a state of crippling fatigue and exhaustion.
It’s been 12 hours since Whitney, who is bedridden and dependent on a feeding tube, last rang the tiny bell he uses to summon his parents when he needs something — and Janet, 71, can’t help but worry.
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