A man living with a rare condition is aiming to raise the profile of the disease this September for Leukodystrophy Awareness Month.
Michael Conway, from Renfrew, was diagnosed with Adrenoleukodystrophy (ALD) – a life-limiting neurological condition which affects 1 in 20,000 men in the UK – in 2016.
People who suffer from rare diseases face at least two challenges, not only must they deal with the consequences of the illness afflicting them, but they must also battle public misunderstanding.
Read more at: https://www.dailyrecord.co.uk/in-your-area/renfrewshire/renfrew-man-hasnt-proper-sleep-28034708
