I’m realizing that a Friedriech’s ataxia (FA) diagnosis is a family affair, and the stories I tell in my column, “Little Victories,” typically offer only one perspective.
I tried to broaden that view when my sister Kiki shared her perspective in my column last month. She is the only sibling out of the three of us who doesn’t have FA.
But it’s also essential to share my other sister Morgan’s view. Although we have the same diagnosis and are from the same family, we have different ways of coping with this progressively debilitating rare condition. I tend to value books, poetry, exercise, and introversion. Following are Morgan’s thoughts on coping with FA, lightly edited for clarity.
Read more at: https://friedreichsataxianews.com/columns/my-sister-who-also-has-fa-finds-strength-family/
