This is one of my “nobody ever told me that” columns.
I was amazed when I read a comment from one of my “MS Wire” readers recently about brain shrinkage. “I’ve had MS since 2011. I had no idea about brain shrinkage,” she wrote. I guess I shouldn’t have been surprised.
A survey taken in 2018 by the Multiple Sclerosis Association of America reported that, of the 1,337 people affected by multiple sclerosis (MS) who responded, only 20% considered themselves to be moderately or very satisfied with the information they received from healthcare providers about brain shrinkage. And 62.7% reported never discussing it with a member of their MS care team. On the other hand, about 78% of respondents said they were either very or extremely concerned about MS-related cognitive decline, and 29% said that cognitive impairment was significantly affecting their life quality.