Little girl diagnosed with neurofibromatosis aged five ‘never ceases to amaze’ – Daily Echo

STEVE Brine MP met a family of constituents as they marked World Neurofibromatosis Awareness Day at Winchester Cathedral.

Mr Brine met Sarah and Pete Burbridge, and their daughter Lilly, who was diagnosed with neurofibromatosis type 1 at the age of five.

The family live in Harestock and contacted the MP who until recently had responsibility for the UK rare diseases strategy as the public health minister.

Read more at: https://www.dailyecho.co.uk/news/17700049.little-girl-diagnosed-with-neurofibromatosis-aged-five-never-ceases-to-amaze/

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