Little girl diagnosed with neurofibromatosis aged five ‘never ceases to amaze’ – Daily Echo

STEVE Brine MP met a family of constituents as they marked World Neurofibromatosis Awareness Day at Winchester Cathedral.

Mr Brine met Sarah and Pete Burbridge, and their daughter Lilly, who was diagnosed with neurofibromatosis type 1 at the age of five.

The family live in Harestock and contacted the MP who until recently had responsibility for the UK rare diseases strategy as the public health minister.

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