In my opinion, one of the worst things about living with a disability is feeling like a burden to others. Although I am the one going through the progressive degeneration of my abilities due to Friedreich’s ataxia (FA), it’s the people in my life who have to help carry that burden, both physically and emotionally.
I am the captain of Team Kendall and we participated in our 8th rideATAXIA fundraising event this weekend. It was a huge success, and we raised $158,000 in support of clinical research for FA. I also got to see many friends in the FA community who I hadn’t seen since 2019.