Let's focus on what we can do!

By Disabled People for Disabled People

Let's focus on what we can do, not what we can't!

Online Platform By Disabled People for Disabled People

Let's focus on what we can do, not what we can't!

Online Platform By Disabled People for Disabled People

I have a disease which makes my bones break easily. My kids have it too – Kidspot

Thursday, 10 March, 2022

I have a disease which makes my bones break easily. My kids have it too – Kidspot

Amanda and her family. Source: supplied

 
I have Osteogenesis Imperfecta (OI) and so do two of my three children. I have had 22 bone breaks, including legs, elbow and ankles. My son Aiden, 11, has had 43 bone breaks.
Those breaks don’t count fingers and toes, which we break often. One time, my husband pulled the quilt up on our bed over us, and that snapped my toe.

Osteogenesis Imperfecta has a strong genetic factor

My daughter Amber, who is two, also has OI. So far, she’s only had a couple of fractures; a leg, and a femur fracture when she fell off the couch – which meant 10 days in traction before a full-body cast. It’s hard when they get to that daredevil stage and you have to say, sorry, sweetheart, you can’t do that – she’s still too young to understand.
Read more at: https://www.kidspot.com.au/parenting/primary-school/i-have-a-disease-which-makes-my-bones-break-easily-my-kids-have-it-too/news-story/1ba56bc18ea51ac5d0572ea44b4238f1

Categories :
  • Brittle Bone Disease
  • Latest Headlines
  • Personal Stories
Socials :

Recent posts