My husband, Arman, has been dealing with a number of symptoms in his head, neck, and back due to his battle with Parkinson’s disease. These have included a stooped posture, a bent spine (called camptocormia), a drooped head, and a bend in his trunk (called Pisa syndrome). He’s also had more falls, which I believe are related to these issues.
Since his diagnosis of early-onset Parkinson’s disease in 2009, we have tried many different treatments in an attempt to reduce some of these problematic symptoms. Arman underwent deep brain stimulation surgery in 2017, and we continue pursuing the optimal settings for his stimulator.
We’ve tried both increasing and decreasing his medication, changing brands, and with Duopa (carbidopa and levodopa), changing how it is delivered.