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  • Finding a balance between ignoring FA and letting it control my life — Friedreich’s Ataxia News
Friday, 8 September, 2023

Finding a balance between ignoring FA and letting it control my life — Friedreich’s Ataxia News

From the minute I wake up each morning, my disability and limitations are in my face, demanding attention, adaptation, and adjustment. In other words, I’m not allowed a moment of bliss when I can forget that I have Friedreich’s ataxia (FA). I guess you could say that feeling abnormal is my normal.

Once I get up and start going through the motions of my day, FA becomes a distracting background character in the sitcom that is my life. The disease interferes with my daily plot progression, but it isn’t part of the main storyline like I imagine it wants to be. I won’t let it.

Yet there are moments, days, and even weeks when FA is so demanding that it commands the spotlight. It’s during these moments, when FA is in the driver’s seat, that I feel like a victim. Feeling like a victim of my circumstances is nearly intolerable for me, but I need those moments to get to know my enemy better and renew my passion for fighting for the life I want.

Read more at: 
https://friedreichsataxianews.com/columns/living-disability-finding-balance-ignoring-fa-letting-it-control-life/
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