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  • Family left ‘devastated’ as Birmingham Children’s Hospital stop care of daughter with rare muscular dystrophy – Birmingham Live

Family left ‘devastated’ as Birmingham Children’s Hospital stop care of daughter with rare muscular dystrophy – Birmingham Live

Thursday, 22 September, 2022

Family left ‘devastated’ as Birmingham Children’s Hospital stop care of daughter with rare muscular dystrophy – Birmingham Live

The family of a severely disabled nine year old girl from Small Heath say they feel helpless after they claim an administrative change in her care has left them with little to no help. Birmingham Children's Hospital transferred the care package for little Maham Zaheer to a private provider in July.

But despite being commissioned for over 100 hours of care per-week, her distraught family say they have seen just 'one or two' care shifts a week since her package was handed to Apollo Home Healthcare. Maham suffers from a rare muscular dystrophy and requires round the clock care including help with feeding and nightly ventilation.

Her parents say they have been left to 'pick up the pieces' following the transfer and said it felt like hospital bosses had 'shut the door' in their faces. Birmingham and Solihull Clinical Commissioning Group (CCG) acknowledged the frequency of care had not been ideal and said it was continuing to speak to the family.

Read more at: https://www.birminghammail.co.uk/news/midlands-news/family-left-devastated-birmingham-childrens-24640539

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