The family of an eight-year-old girl say they are running into debt with their power provider after their monthly bill rocketed due to the cost of the equipment needed to keep her alive.
Maddison Sherwood was born with a rare muscle and respiratory condition, called Spinal muscular atrophy with respiratory distress type 1, with doctors warning the family she may die before her second birthday.
But the brave eight-year-old, from East Leake, called a “phenomenon” by her mother, is set to reach her ninth birthday on Sunday.
Her condition means she has low muscle tone, has poor swallowing abilities and can’t breath unaided. She uses a tracheostomy tube to breathe, relies on a wheelchair, and has round-the-clock care from her parents.
She has also used a ventilator since she was nine-months-old to help her breathe, plus her bed and bath are powered by electricity.
Her parents, Lidia, 31, and Jamie Sherwood, 33, say they are now running into debt with their power provider E.on after their bills increased from £163 to £230 a month recently.
Mrs Sherwood told the Post: “I can’t say it is high what E.on are charging because we do use a lot of electricity but there seems to be no specialised tariffs. We can’t cut back on that bill. We can’t turn the ventilator off for an hour. It is not possible.