Disparities Found in Parents, Children’s Perceptions of SMA – SMA News Today

Perceptions about illness often don’t line up between children with spinal muscular atrophy (SMA) and their parents, with mothers and fathers often perceiving disease severity as worse than their children do, according to a recent study.

Importantly, children’s perceptions of their disease are closely associated with their quality of life, the study found. That highlights the importance of discussing children’s perceptions about their illness when providing healthcare to them.

Click here to read full article https://smanewstoday.com/2020/06/26/disparities-found-parents-childrens-perceptions-sma-new-study/

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