Couple with FSHD Relish Shared Independence, Advocacy Work – Muscular Dystrophy News

Ray Jordan and Cyndi Segroves, a married couple with facioscapulohumeral muscular dystrophy (FSHD), haven’t let their disability get in the way of anything.

They’ve traveled from their Arizona home to destinations around the world — from Hawaii and New York City, to London and Sydney, from Costa Rica to Cozumel, Mexico. The couple also advocates for disability rights while working full-time — Segroves as a software quality analyst and Jordan as part-owner of a bowling machine manufacturing and supply company.

But what has drawn them together is strong communication, trust, and the desire for independence.

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