Eleven-year-old twins from Warrington are taking on a superhero challenge by climbing the equivalent of Iron Man’s Stark Towers. Oscar and Sebastian Spink were diagnosed with facioscapulohumeral muscular dystrophy (FSHD) in July 2019, an incurable muscular degenerative disorder that makes physical movement difficult.
They have campaigned to raise money for Muscular Dystrophy UK, a charity who were “like a port in a storm” to the Spink family after the shock diagnosis. Over the years, the Lymm family have raised over £28,000 for the charity, but by the end of the year they are hoping to reach £30,000.
The boys are Marvel-obsessed, and have decided to take on their latest physical challenge of climbing a height equivalent to Iron Man’s Stark Tower which features in the Avengers films, a huge 2,000 steps. They will be completing this task over the entire month of April. Yet this is not an easy fete for the boys, who are often in pain and struggle with movement.