Spinal muscular atrophy

Treatment Is Key for All With SMA, But Gains Will Differ – SMA News Today

Treating newborns whose spinal muscular atrophy (SMA) is discovered in screening programs — before symptoms…

0205

Thinking Outside the Box to Support My Son With Spinal Muscular Atrophy – Yahoo Lifestyle

  When a person…

0269

How different generations living with SMA can teach one another – SMA News Today

Paying it forward Meet Regina and Al. Their friendship and respect for one another all started…

0376

Coronavirus: The shielders turning the word ‘vulnerable’ on its head – BBC News

This weekend shielding will officially stop. The ‘elderly and vulnerable’ who have followed stringent rules will re-join society and follow the same social…

0462

Wheelchair-bound man slams insurance company over rejected claim – Daily Mail

A wheelchair-bound man who is almost completely paralyzed has called out his private insurance company…

0499

Phase 4 Nusinersen Trial Underway in Infants, Children With Spinal Muscular Atrophy – Pharmacy Times

A phase 4 study is underway to assess the safety of nusinersen (Spinraza, Biogen) in…

0457

Understanding Impact of COVID-19 on Spinal Muscular Atrophy Market – 3rd Watch News

  The global spinal muscular atrophy market witnesses…

0584

Disparities Found in Parents, Children’s Perceptions of SMA – SMA News Today

Perceptions about illness often don’t line up between children with spinal muscular atrophy (SMA) and…

0649

Girl struggling to walk denied NHS drug because she took one step too few – Liverpool Echo

  A…

0961

Study: Heart Problems in SMA May Be Tied to Calcium Dysregulation – SMA News Today

Heart problems associated with spinal muscular atrophy (SMA) may be caused partially by calcium dysregulation…

0797

SMA Patients in England Can Now Access 3 More Spinraza Treatment Sites – SMA News Today

With the addition of these centers, there are now 11 National Health Service Foundation Trust…

0837

Too Little Known About Care Needs of Adults with SMA, Study Says – SMA News Today

A better understanding of the needs of adults with spinal muscular atrophy (SMA), best ensuring…

0909

Managing SMA Is Like an Ongoing Chess Match – SMA News Today

  Puzzles are all the rage these…

0897

Time Is Motor Neurons A father’s perspective: Our journey to finding a treatment – SMA News Today

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our…

01.3k

Evidence Points to Benefits of Newborn Screening for SMA, German Researchers Say – SMA News Today

Researchers in Germany have found that newborn screening for spinal muscular atrophy (SMA) would likely…

01k

Interplay of Motor Neurons and Glial Cells at Root of SMA, Review Suggests – SMA News Today

The interplay between different types of nerve cells, including motor neurons and glial cells, seems…

01.1k

Engineers supporting children’s learning during COVID-19 lockdown – The Engineer

With many schools closed, Primary Engineer’s ‘If you were an engineer, what would you do?’ competition is now available for school pupils to…

01.2k

Growth-friendly Spinal Implants May Help SMA Children Before Fusion Surgery – SMA News Today

Spinal fusion surgery — a procedure to fuse two or more spine vertebrae — is…

01.2k

This Influencer Has Spinal Muscular Atrophy Type 2 and It Inspired Her to Make a Size-Inclusive Clothing Line – Health.com

  Our series This Is Me is about being empowered to…

01.5k

Should Biogen’s Spinraza for SMA be delayed amid COVID-19? No, say these parents – FiercePharma

Biogen said it is working with families and healthcare providers to try…

01.3k
Font Resize