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Spinal muscular atrophy

Neural Stem Cell Transplants May Delay Progression of SMARD1 – SMA News Today

Transplanting a subset of neural stem cells (NSCs) to…

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Area toddler faces challenges with Spinal Muscular Atrophy Type 1 – Vinton Today

LyRick, a little Vinton resident, is in a fight for his life…

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‘Children’s services need to integrate to improve – here’s how’ – Communitycare.co.uk

It is indisputable that children’s…

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Across SMA Types, Swallowing and Speech Problems Can Be Common, Study Finds – SMA News Today

Swallowing and speech problems are common in both children…

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Russia Approves Spinraza to Treat All SMA Patients – SMA News Today

Olga and Andrew Fuks with their children, Katya and Oscar, both of…

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The devastating reason Scott Morrison has stood behind children battling spinal muscular atrophy – Daily Mail

Jenny Morrison met Roslyn Krouskos through her daughters’ school…

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Health insurance companies deny kids with SMA gene therapy Zolgensma – Business Insider

The health insurer Anthem Blue Cross Blue Shield has denied Jackson Schultheis…

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’31 Days of SMA’ Among Highlights of August, SMA Awareness Month – SMA News Today

SMA News Today, having launched forums and added regular columnists, is now running a month-long series to…

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31 Days of SMA: Confronting an SMA Diagnosis – SMA News Today

Day 4 of 31 Days of SMA⁣⠀⁣⁣ Topic: Confronting and SMA Diagnosis⠀⁣⁣ This is Byron’s Story:⠀⁣⁣ ⠀⁣⁣ It’s March 19th, 2015…

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31 Days of SMA: Employment and SMA – SMA News Today

31 Days of SMA⁣⠀ To start off SMA Awareness Month, we have Jaclyn Greenwood speaking on employment and…

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Wheelchair bound Bristol teen fighting ‘immensely cruel’ decision to bar him from life changing drug – Bristol Post

A Bristol teenager is in a fight against “discriminatory” and “immensely cruel” health guidelines that are barring…

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Hayes in the House: MP talks about his casework and focuses on spinal muscular atrophy – Spalding Today

In this spirit, when Tanya White contacted me about her daughter Rae’s medical needs, I learned a…

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Enhancing the Quality of Life for Patients with Spinal Muscular Atrophy – ThirdAge

Spinal Muscular Atrophy (SMA) is the umbrella term for a group of genetic disorders that cause muscle…

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Meet Jake – a 13-year-old theatre trailblazer – CBBC Newsround

Meet Jake. He loves the magic of theatre – the props, the costumes and bringing characters to…

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Biogen spinal muscular atrophy drug shows strong data in long-term follow-up – MedCity News

Updated Phase II data on a drug used to treat spinal muscular atrophy show strong efficacy among…

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Newcomer BillionToOne launches prenatal blood screener for cystic fibrosis, SMA and sickle cell – FierceBiotech

The company’s molecule-counting diagnostic test, Unity, searches for cell-free fetal DNA using…

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Campaign girl ‘ineligible’ for muscle wasting drug – BBC News

The family of a girl who campaigned for a drug to treat her muscle-wasting disease to be…

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New gene therapy poised to transform care for spinal muscular atrophy – Medical Xpress

The University of Rochester Medical Center (URMC) has been tapped as one of the first institutions in…

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Spinal muscular atrophy: Spinraza approval delights family – BBC News

The mother of a girl with a muscle-wasting disease is delighted a drug that may slow her…

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Wolverhampton mum calls for decision on use of Spinraza – BBC News

The mother of an 11-year-old girl with a muscle-wasting disease is calling for health chiefs to speed…

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