Study Findings Offer More Understanding of Natural History of Type III SMA – AJMC
By assessing longitudinal changes in functional status, researchers are offering a better understanding of the…
How advances are changing the standard of care for patients with spinal muscular atrophy – Pharmafield
This August is Spinal Muscular Atrophy (SMA) Awareness Month. It’s the perfect time to celebrate…
Treatment Is Key for All With SMA, But Gains Will Differ – SMA News Today
Treating newborns whose spinal muscular atrophy (SMA) is discovered in screening programs — before symptoms…
How different generations living with SMA can teach one another – SMA News Today
Paying it forward Meet Regina and Al. Their friendship and respect for one another all started…
Coronavirus: The shielders turning the word ‘vulnerable’ on its head – BBC News
This weekend shielding will officially stop. The ‘elderly and vulnerable’ who have followed stringent rules will re-join society and follow the same social…
Wheelchair-bound man slams insurance company over rejected claim – Daily Mail
A wheelchair-bound man who is almost completely paralyzed has called out his private insurance company…
Phase 4 Nusinersen Trial Underway in Infants, Children With Spinal Muscular Atrophy – Pharmacy Times
A phase 4 study is underway to assess the safety of nusinersen (Spinraza, Biogen) in…
Understanding Impact of COVID-19 on Spinal Muscular Atrophy Market – 3rd Watch News
The global spinal muscular atrophy market witnesses…
Disparities Found in Parents, Children’s Perceptions of SMA – SMA News Today
Perceptions about illness often don’t line up between children with spinal muscular atrophy (SMA) and…
Study: Heart Problems in SMA May Be Tied to Calcium Dysregulation – SMA News Today
Heart problems associated with spinal muscular atrophy (SMA) may be caused partially by calcium dysregulation…
SMA Patients in England Can Now Access 3 More Spinraza Treatment Sites – SMA News Today
With the addition of these centers, there are now 11 National Health Service Foundation Trust…
Too Little Known About Care Needs of Adults with SMA, Study Says – SMA News Today
A better understanding of the needs of adults with spinal muscular atrophy (SMA), best ensuring…
Managing SMA Is Like an Ongoing Chess Match – SMA News Today
Puzzles are all the rage these…
Time Is Motor Neurons A father’s perspective: Our journey to finding a treatment – SMA News Today
When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our…
Evidence Points to Benefits of Newborn Screening for SMA, German Researchers Say – SMA News Today
Researchers in Germany have found that newborn screening for spinal muscular atrophy (SMA) would likely…
Interplay of Motor Neurons and Glial Cells at Root of SMA, Review Suggests – SMA News Today
The interplay between different types of nerve cells, including motor neurons and glial cells, seems…
Engineers supporting children’s learning during COVID-19 lockdown – The Engineer
With many schools closed, Primary Engineer’s ‘If you were an engineer, what would you do?’ competition is now available for school pupils to…
Growth-friendly Spinal Implants May Help SMA Children Before Fusion Surgery – SMA News Today
Spinal fusion surgery — a procedure to fuse two or more spine vertebrae — is…