Neurofibromatosis

Glasgow families of disabled children face big financial pressures – Evening Times

Glasgow Families of Disabled Children Face Financial Issues GLASGOW has been named as one of the areas in the UK with the highest percentages…

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It’s for charity! The Bachelorette’s Apollo Jackson and Survivor’s Flick Egginton strip down for racy shoot to raise money for neurofibromatosis – Daily Mail

Neurofibromatosis Charity gets fan favourites, The Bachelorette’s Apollo Jackson and Australian Survivor’s Felicity ‘Flick’ Egginton to strip down for charity. The genetically-blessed duo, who were friends…

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Sick tot has life turned around thanks to hugs from therapy dog – Scottish Daily Record

A boy with a condition which means tumours can grow at nerve endings anywhere in his body has had his life turned around…

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4-year-old Ryder gets his wish to go to Disney World – St George News

At 4 months old, Ryder Spears was diagnosed with neurofibromatosis, a genetic disorder that affects almost every organ system in the body. “It develops…

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£7k crowdfunding goal of aspiring England wheelchair footballer – Swindon Advertiser

A WHEELCHAIR footballer who aspires to play for his country is attempting to crowdfund £7,000 to raise money for the power chair that…

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‘Nobody would want to marry this face’: Teenager with giant facial tumours dreams of dressing up as a bride but lives as a recluse because of cruel taunts from strangers about her condition – Daily Mail

A teenage girl revealed she hasn’t left her house in years because she is bullied over her giant facial tumours. Rubi Dulari, from India,…

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Bridgwater parents of ‘inspiring’ boy in public appeal for charity fundraiser – Somerset Live

The parents of an inspirational child are encouraging everyone to wear their jeans to work and school. As part of a fundraising day ‘Jeans…

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Warden Bay: Mum Cheryl Fenton abseils down tallest building in Portsmouth for son Dylan – Kent Online

A mother abseiled down the tallest structure in Portsmouth to raise money for her son who is recovering from surgery to remove a…

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Mum of poorly Fiona, 15, says support from Dundonians has been ‘tremendous’ – Evening Telegraph

Fiona Clark, 15, from the Hilltown, was born with neurofibromatosis — a genetic condition which causes tumours to grow along nerves. Usually the tumours…

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Key Advance in Neurofibromatosis Research Might Result in New Therapies – Genetic Engineering & Biotechnology News

Researchers from the University of Plymouth and Plymouth Hospitals NHS Trust say they have shed light on the role of the normal, cellular…

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Turmeric May Be One of Nature’s Gifts for Neurofibromatosis – Newswire

Curcumin is believed to slow neurofibromatosis progression. This condition actually results from the inactivation of the tumor suppressor gene that leads to tumor…

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Blind and deaf author launches second autobiography – Free Malaysia Today

PETALING JAYA: Author and motivational speaker Yvonne Foong has released her second book, a direct sequel to her first autobiography which details her…

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Increased cancer incidence, mortality linked to neurofibromatosis type 1 – Healio

These data confirmed the substantial mortality burden associated with neurofibromatosis type 1 (NF1)-specific cancers, which include central nervous system and peripheral nervous tumors….

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Helping others high on her bucket list – dailytelegraph.com.au

Ms Weihen satisfied one long-held wish to go skydiving with her mum Robyn in Hawaii. That was just before her pre-Christmas surgery and…

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Aberdeen mum speaks on fears for son, 6, suffering from tumour condition – Aberdeen Evening Express

A mum-of-two today said she fears for her six-year-old son who suffers from a condition that causes tumours to grow on nerves around…

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Runners race in undergarments to fight tumor disorder neurofibromatosis – News & Observer

Runners race in undergarments to fight tumor disorder neurofibromatosis. Cupid’s Undie Run raises awareness of neurofibromatosis. More than $56,000 has been raised in…

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Patient’s Skin Cells Can Hunt down Cancerous Formations – Beacon Transcript

Sadly, the cause of this rapidly progressing cancer is still unknown, but doctors are yet to rule out certain unusual circumstances such as…

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Boy with giant eye tumour saved by Facebook plea – Daily Star

A YOUNG boy can have the life-changing operation he so badly needs thanks to a viral Facebook post. By Sarah Buchanan / Published…

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Hundreds ran in their undies for neurofibromatosis research (PHOTOS) – NJ.com

Cupid’s Undie Run was started in Washington, D.C., in 2010 to raise money for neurofibromatosis (NF), a condition that causes tumors to form…

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Disfigured heroes like Deadpool help people like me fight prejudice – The Guardian (blog)

As someone with neurofibromatosis, a condition that has caused numerous non-cancerous tumours to grow on my face, I’m interested in how comedy deals…

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