Neurofibromatosis

Social worker, 57, who is covered from head to toe in tiny tumours reveals how she’s been refused into swimming pools and asked to move on flights by heartless strangers – Daily Mail

A woman who is covered from head to toe in tiny tumours reveals how she has been…

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Paediatric brain tumours occur more often in children with common genetic syndrome – Brain Tumour Research

According to a study carried out by the Washington University School of Medicine, the frequency of brain…

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Milton Keynes celebrates six inspirational young children at special awards ceremony – Milton Keynes Citizen

Six children who have overcome huge personal challenges have been recognised at a special awards ceremony. The…

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Chicago’s Lighthouses: Shedding light on artists with disabilities – CBS News

Some street art in Chicago is shedding light on the challenges millions of us face every day….

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What is neurofibromatosis, what causes Adam Pearson’s condition, what are the symptoms and is there a cure? – The Sun

NEUROFIBROMATOSIS affects around one in 3,000 people – with symptoms ranging in severity. Here’s everything you need to…

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Winchester father pounds the streets inspired by daughter’s condition – Hampshire Chronicle

A WINCHESTER man inspired by his daughter’s condition has raised more than £4,000 by the running the…

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How an inspirational fundraiser is now focused on herself – Manchester Evening News

Kay Ashton was only nine-year’s-old when she started doing things to help others less fortunate than her. Her…

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Parents’ agony after their toddler son became Britain’s youngest stroke victim aged just 19 months – The Sun

A DAD has described the terrifying moment his son became Britain’s youngest stroke victim. Phil Kerman, 39, said…

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Dad diagnoses 19-month-old son’s stroke thanks to TV advert – The Independent

A father heroically saved his 19-month-old son’s life when he realised that the toddler was suffering from…

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Bransholme dad’s horror as toddler son suffers a stroke – Hull Daily Mail

A dad-of-three has spoken of his horror after his 19-month-old son was rushed to hospital after his…

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Why there need to be more autistic characters in children’s books – The Conversation UK

The children’s writer Michael Morpurgo has written a new novel inspired by his autistic grandson, which is…

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From skydiving in Hawaii to swimming with turtles: Woman, 28, given just five years to live embarks on a worldwide adventure to tick off items on her bucket list – Daily Mail

A terminal cancer sufferer is determined to defy doctors’ five years to live prognosis thanks to her…

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Call for ‘scores on the doors’ disability access ratings – BBC News

A “scores on the doors” system should be introduced to rate disabled access for surgeries, shops and restaurants, campaigners have said. About 2,000 people…

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Mum’s pride at her “tough little cookie” – North Wales Chronicle

AN Anglesey mum has spoken of the bravery of her “tough little cookie” son who is suffering with a rare genetic condition. Nine-year-old Koren…

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Raising awareness through art – Norfolk Daily News

When her son was just 4 months old, Rachel Mindrup got news no mother wants to hear. Her baby, Henry, had an unpredictable, progressive,…

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A cluster of mutations in neurofibromatosis is an important risk factor for severe symptoms – The University of Alabama at Birmingham

Research led by Ludwine Messiaen, Ph.D., professor of genetics at the University of Alabama at Birmingham, shows that missense mutations in a cluster…

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Young mum shares heartbreaking video of daughter, 2, in desperate bid to raise money for brain tumour treatment in the US – The Scottish Sun

A YOUNG mum has shared a heartbreaking video of her little girl’s cancer treatment in a race against time to raise £300,000 to…

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Glasgow families of disabled children face big financial pressures – Evening Times

Glasgow Families of Disabled Children Face Financial Issues GLASGOW has been named as one of the areas in the UK with the highest percentages…

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It’s for charity! The Bachelorette’s Apollo Jackson and Survivor’s Flick Egginton strip down for racy shoot to raise money for neurofibromatosis – Daily Mail

Neurofibromatosis Charity gets fan favourites, The Bachelorette’s Apollo Jackson and Australian Survivor’s Felicity ‘Flick’ Egginton to strip down for charity. The genetically-blessed duo, who were friends…

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Sick tot has life turned around thanks to hugs from therapy dog – Scottish Daily Record

A boy with a condition which means tumours can grow at nerve endings anywhere in his body has had his life turned around…

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