Neurofibromatosis

‘The House of Extraordinary People’ Cast Member Responds to Criticism – The Mighty

A new British TV series, “The House of Extraordinary…

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North Derbyshire family raising awareness of rare incurable genetic condition after shock diagnosis for their two-year-old daughter – Derbyshire Times

Haylee Dolley who has been diagnosed with a rare genetic disease called…

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Open science and data initiative announced for neurofibromatosis – EurekAlert

The Children’s Tumor Foundation (CTF), together with the Neurofibromatosis…

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The secret I’m hiding under my oversized fashion style – BBC News

Arooj Aftab, 22, is an influencer who is known…

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My Tumour Made Me Trendy – a Newsbeat documentary – BBC News

Fashion influencer Arooj Aftab’s style is baggy fashion. She’s thriving…

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Woman in DWP benefits row could be paralysed in high-risk operation – Liverpool Echo

A young woman with a rare genetic condition who…

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More than just birthmarks: Living with neurofibromatosis – RACGP

Paul Phegan, Dr Caroline Phegan, and their two children, Naomi and James….

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Brotherly love! Toddler who became one of Britain’s youngest stroke victims at just 19 months old is on the road to recovery…under the watchful eye of his devoted twin – Daily Mail

A brave toddler who became one of Britain’s youngest…

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What is neurofibromatosis type 1 (NF1)? – Lancashire Evening Post

Neurofibromatosis type 1 (NF1) is a…

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Social worker, 57, who is covered from head to toe in tiny tumours reveals how she’s been refused into swimming pools and asked to move on flights by heartless strangers – Daily Mail

A woman who is covered from head to toe in tiny tumours reveals how she has been…

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Paediatric brain tumours occur more often in children with common genetic syndrome – Brain Tumour Research

According to a study carried out by the Washington University School of Medicine, the frequency of brain…

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Milton Keynes celebrates six inspirational young children at special awards ceremony – Milton Keynes Citizen

Six children who have overcome huge personal challenges have been recognised at a special awards ceremony. The…

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Chicago’s Lighthouses: Shedding light on artists with disabilities – CBS News

Some street art in Chicago is shedding light on the challenges millions of us face every day….

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What is neurofibromatosis, what causes Adam Pearson’s condition, what are the symptoms and is there a cure? – The Sun

NEUROFIBROMATOSIS affects around one in 3,000 people – with symptoms ranging in severity. Here’s everything you need to…

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What is neurofibromatosis – Wyandotte Daily

what is neurofibromatosis News: MedisinNo conducted to assess the iPad. in Hispanic adults. Levalbuterol Metered Dose Inhaler. 7gm…

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Winchester father pounds the streets inspired by daughter’s condition – Hampshire Chronicle

A WINCHESTER man inspired by his daughter’s condition has raised more than £4,000 by the running the…

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How an inspirational fundraiser is now focused on herself – Manchester Evening News

Kay Ashton was only nine-year’s-old when she started doing things to help others less fortunate than her. Her…

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Parents’ agony after their toddler son became Britain’s youngest stroke victim aged just 19 months – The Sun

A DAD has described the terrifying moment his son became Britain’s youngest stroke victim. Phil Kerman, 39, said…

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Dad diagnoses 19-month-old son’s stroke thanks to TV advert – The Independent

A father heroically saved his 19-month-old son’s life when he realised that the toddler was suffering from…

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Bransholme dad’s horror as toddler son suffers a stroke – Hull Daily Mail

A dad-of-three has spoken of his horror after his 19-month-old son was rushed to hospital after his…

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