Neurofibromatosis

Brooklyn Photographer Brings Attention to NF, the “Invisible Disease” – Brooklyn Reader

14-year-old Aiden Warga and his father, Craig Warga. Photo: Brianna Lopez for…

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Oakwood family with neurofibromatosis hopes to spread awareness about the rare disease – SILive.com

From the left, Thomas, Thomas, Laura, Christina and Nicholas, in front, Christophersen…

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Mum reveals tiny detail in photo led to daughter’s shock diagnosis – Yahoo News NZ

Aussie mum Claudia Hobday opens up to Yahoo Lifestyle about her daughter Zoe’s journey with Neurofibromatosis, a genetic disorder that causes tumours to…

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Cessnock boy Hamish McClellan and family want to bring Neurofibromatosis ‘out of the shadows’ – Cessnock Advertiser

DETERMINED: Hamish McClellan, 9, doesn’t let neurofibromatosis stop him from enjoying activities…

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Brianna Worden is spreading awareness about neurofibromatosis: ‘[It’s] the most common neurological disorder, but no one knows about it’ – Yahoo Philippines News

Brianna Worden is the 23-year-old spokesperson for the Children’s Tumor Foundation. She was chosen as…

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Young Warwickshire man speaks out about nerve condition on World Neurofibromatosis Awareness Day – Rugby Observer

TODAY is World Neurofibromatosis Awareness Day and a young Leamington man has spoken about how…

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Max shares his story to raise awareness of Neurofibromatosis – The Courier

Max Rego will be on crutches for the next few weeks while his leg is in plaster. But no, he did not break…

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Nikkita and her daughters live with NF, here’s what she wishes people knew – The Canberra Times

FIGHTING NF: Nikkita Dane and her two daughters, Charlotte, 4, and Sophia,…

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Leeds mum and children living with tumours all over their bodies that can grow at any time – Leeds Live

  A Leeds mum has told how…

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10 years on: the Essex schoolboy continuing to beat the odds – ITV News

A schoolboy from Essex, whose odds of survival were just 30% when he was born,…

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Disabled Edinburgh man’s car smashed as thieves steal his blue badge – Edinburgh Live

  An…

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Drug May Reduce Tumor Volume in Neurofibromatosis – Technology Networks

Based on preclinical studies of an investigational drug to treat peripheral nerve tumors, researchers at…

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Partially blind man unable to complete Track & Trace form ‘refused entry’ into Wellington pub, which they deny – Shropshire Star

Robert Teckoe said he was refused entry into The William Withering pub…

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Technion discovers how to reduce cognitive damage from brain disease – The Jerusalem Post

From Right to Left: Pig’s brain; standard MRI brain scan; new MRI…

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Courtney wants us to Shine A Light on nerve tumour campaign – Times & Star

A West Cumbrian woman is raising awareness of neurofibromatosis after living with the condition all…

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Targeting immune cells may slow some brain tumors in kids – Futurity: Research News

  Neurons and immune cells work together to promote tumor growth…

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Pediatric Neurofibromatosis: What’s Next for the Rare Tumor Syndrome? – Oncology Nursing News

Until recently, there was no FDA-approved therapy for pediatric patients with neurofibromatosis type 1 (NF1),…

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Meet the woman who embraced neurofibromatosis and became a social media make-up sensation – Extra.ie

Growing up with neurofibromatosis was a difficult experience for Rhonda Manring, but…

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FDA approves first ever treatment for neurofibromatosis – EurekAlert

  The U.S. Food and Drug Administration (FDA)…

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Fitness coach Joe Wicks delights 9-year-old Callum with the call on BBC news – Echo

A FITNESS star surprised an inspirational youngster with a video call live on TV. Fitness coach,…

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