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Neurofibromatosis

Brain Surgery Can’t Stop This 22-Year-old From Spreading Cheer With His ‘Fast And Joyous’ Christmas Car – Good News Network

Despite a devastating medical diagnosis, a recent college graduate…

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‘I am strong and want to the best I can be’ – London student living with neurofibromatosis – South West Londoner

A London physiotherapy student wants to ‘be the best…

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Adam Pearson: ‘I thought it was a really clever script and premise for a film commentating on the history of disability in cinema’ – The List

Activist and actor discusses his role in Aaron Schimberg’s…

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Dr. Mattingly presents during second annual NF HACKATHON – The South End

Ray Mattingly, Ph.D., far right, participates in the NF Hackathon in San…

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Teenager can walk again thanks to Dutch 3D printed spinal implant – DutchNews.nl

A 16-year-old boy and a…

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Little girl diagnosed with neurofibromatosis aged five ‘never ceases to amaze’ – Daily Echo

STEVE Brine MP met a family of constituents as…

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Heartbroken mum recalls how six birth marks revealed this little girl had a deadly disorder – Daily Mail

A mother has been confronted with the harrowing news…

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Boy with rare genetic disorder Neurofibromatosis 2, needs your help – Plymouth Live

When Tracy Walters was eight months pregnant, her eight-year-old…

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Adam Pearson neurofibromatosis: What is the genetic disorder? Signs and symptoms revealed – Express

Actor Adam Pearson, 34, will feature on BBC’s Pointless…

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Inspirational Rachael Reynolds speaks about living with neurofibromatosis – Female First

The TV show followed nine people living under the…

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The total raised will go towards the Nerve Tumours UK – North Wales Chronicle

A GROUP of Bangor University students recently stripped to…

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‘The House of Extraordinary People’ Cast Member Responds to Criticism – The Mighty

A new British TV series, “The House of Extraordinary…

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North Derbyshire family raising awareness of rare incurable genetic condition after shock diagnosis for their two-year-old daughter – Derbyshire Times

Haylee Dolley who has been diagnosed with a rare genetic disease called…

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Open science and data initiative announced for neurofibromatosis – EurekAlert

The Children’s Tumor Foundation (CTF), together with the Neurofibromatosis…

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The secret I’m hiding under my oversized fashion style – BBC News

Arooj Aftab, 22, is an influencer who is known…

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My Tumour Made Me Trendy – a Newsbeat documentary – BBC News

Fashion influencer Arooj Aftab’s style is baggy fashion. She’s thriving…

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Woman in DWP benefits row could be paralysed in high-risk operation – Liverpool Echo

A young woman with a rare genetic condition who…

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More than just birthmarks: Living with neurofibromatosis – RACGP

Paul Phegan, Dr Caroline Phegan, and their two children, Naomi and James….

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Brotherly love! Toddler who became one of Britain’s youngest stroke victims at just 19 months old is on the road to recovery…under the watchful eye of his devoted twin – Daily Mail

A brave toddler who became one of Britain’s youngest…

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What is neurofibromatosis type 1 (NF1)? – Lancashire Evening Post

Neurofibromatosis type 1 (NF1) is a…

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