Neurofibromatosis

Ely Cathedral Joins Landmarks Around the World in Support of Neurofibromatosis Awareness Month – Spotted in Ely

May is Neurofibromatosis (NF) awareness month, and on the 17th May (Tuesday) Ely Cathedral are…

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Father whose incurable condition causes tumours on his nerves reveals warning sign everyone should know – The Independent

  An account manager…

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New molecule holds promise in potential therapies for cancer and rare diseases – EurekAlert

  Researchers at the University of California, Irvine and the Italian Institute…

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British Science Week: Our research impact – Brain Tumour Research

On the first day of British Science Week, Director of Research, Policy and Innovation at…

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Symptoms and signs of neurofibromatosis by Australian mum who noticed strange detail in son’s reflection – Verve times

Rebecca Lilly was surrounded by a team of 20 specialists, each of whom took turns…

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Should We Cast Actors that ‘Live’ their Roles in Real Life? — Shout Out UK

Rethinking casting choices The Danish Girl is a biographical drama loosely based on the true story…

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Hayley lives with neurofibromatosis. She has learnt to ‘breathe’ through the pain caused by constant tumours – ABC

  Finding a lump on your…

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Changing Faces urge James Bond franchise to stop facial disfigurements for villians – Herald Scotland

  A LEADING…

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Gilbert Family Foundation Funds Clinical Study to Understand Vision Loss from NF1 Optic Pathway Glioma – Yahoo Finance

  The Gilbert Family Foundation, a private nonprofit established by Jennifer…

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Scientists inch closer to developing blood test for certain nerve cancers – Philly Voice

Researchers at the National Cancer Institute are developing a blood test that…

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In a common genetic disorder, blood test reveals when benign tumors turn cancerous – National Institutes of Health

People with an inherited condition known as neurofibromatosis type 1, or NF1, often develop non-cancerous,…

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Dad’s pride as inspirational teen son with challenging health conditions wins award for his courage – Lincolnshire Live

  A courageous teenager with the…

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Koselugo: The First Non-Surgical Alternative for Rare Plexiform Neurofibroma – BioSpace

  Painful….

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Antihypertension drug may benefit patients with neurofibromatosis type 2 – News-Medical.Net

New research led by investigators at Massachusetts General Hospital (MGH) and Massachusetts Eye and Ear…

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Brooklyn Photographer Brings Attention to NF, the “Invisible Disease” – Brooklyn Reader

14-year-old Aiden Warga and his father, Craig Warga. Photo: Brianna Lopez for…

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Oakwood family with neurofibromatosis hopes to spread awareness about the rare disease – SILive.com

From the left, Thomas, Thomas, Laura, Christina and Nicholas, in front, Christophersen…

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Mum reveals tiny detail in photo led to daughter’s shock diagnosis – Yahoo News NZ

Aussie mum Claudia Hobday opens up to Yahoo Lifestyle about her daughter Zoe’s journey with Neurofibromatosis, a genetic disorder that causes tumours to…

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Cessnock boy Hamish McClellan and family want to bring Neurofibromatosis ‘out of the shadows’ – Cessnock Advertiser

DETERMINED: Hamish McClellan, 9, doesn’t let neurofibromatosis stop him from enjoying activities…

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Brianna Worden is spreading awareness about neurofibromatosis: ‘[It’s] the most common neurological disorder, but no one knows about it’ – Yahoo Philippines News

Brianna Worden is the 23-year-old spokesperson for the Children’s Tumor Foundation. She was chosen as…

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Young Warwickshire man speaks out about nerve condition on World Neurofibromatosis Awareness Day – Rugby Observer

TODAY is World Neurofibromatosis Awareness Day and a young Leamington man has spoken about how…

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