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Neurofibromatosis

Volunteer with disabilities helps blind watch movies at Military World Games – Xinhua

Du Chengcheng immediately attracted attention after showing up at an outdoor promotion activity for the 7th World…

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Little girl diagnosed with neurofibromatosis aged five ‘never ceases to amaze’ – Daily Echo

STEVE Brine MP met a family of constituents as they marked World Neurofibromatosis Awareness Day at Winchester…

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Heartbroken mum recalls how six birth marks revealed this little girl had a deadly disorder – Daily Mail

A mother has been confronted with the harrowing news that no parent wants to hear – her…

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Boy with rare genetic disorder Neurofibromatosis 2, needs your help – Plymouth Live

When Tracy Walters was eight months pregnant, her eight-year-old son underwent major brain surgery after tumours had…

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Adam Pearson neurofibromatosis: What is the genetic disorder? Signs and symptoms revealed – Express

Actor Adam Pearson, 34, will feature on BBC’s Pointless gameshow this afternoon. The presenter and campaigner is…

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Inspirational Rachael Reynolds speaks about living with neurofibromatosis – Female First

The TV show followed nine people living under the same roof for 10 days, confronting public prejudices…

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The total raised will go towards the Nerve Tumours UK – North Wales Chronicle

A GROUP of Bangor University students recently stripped to their pants to raise £1684.29 for charity. 70 people…

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‘The House of Extraordinary People’ Cast Member Responds to Criticism – The Mighty

A new British TV series, “The House of Extraordinary People,” premiered March 18 on Channel 5, and…

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North Derbyshire family raising awareness of rare incurable genetic condition after shock diagnosis for their two-year-old daughter – Derbyshire Times

A north Derbyshire family is raising awareness of a rare incurable genetic condition after their two-year-old daughter…

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Open science and data initiative announced for neurofibromatosis – EurekAlert

The Children’s Tumor Foundation (CTF), together with the Neurofibromatosis Therapeutic Acceleration Program (NTAP) and Sage Bionetworks (Sage),…

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The secret I’m hiding under my oversized fashion style – BBC News

Arooj Aftab, 22, is an influencer who is known for her baggy fashion style. But what her…

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My Tumour Made Me Trendy – a Newsbeat documentary – BBC News

Fashion influencer Arooj Aftab’s style is baggy fashion. She’s thriving in an industry where looks are key, but…

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Woman in DWP benefits row could be paralysed in high-risk operation – Liverpool Echo

A young woman with a rare genetic condition who is in dispute with the Department for Work…

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More than just birthmarks: Living with neurofibromatosis – RACGP

Before she had her children, Dr Caroline Phegan, like many of her peers, didn’t know much about…

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Brotherly love! Toddler who became one of Britain’s youngest stroke victims at just 19 months old is on the road to recovery…under the watchful eye of his devoted twin – Daily Mail

A brave toddler who became one of Britain’s youngest stroke victims is on the road to recovery…

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What is neurofibromatosis type 1 (NF1)? – Lancashire Evening Post

Neurofibromatosis type 1 (NF1) is a genetic condition that causes tumours to grow along your nerves. NF1…

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Social worker, 57, who is covered from head to toe in tiny tumours reveals how she’s been refused into swimming pools and asked to move on flights by heartless strangers – Daily Mail

A woman who is covered from head to toe in tiny tumours reveals how she has been…

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The perils of living with neurofibromatosis – The Voice Online

A pensioner with a rare skin condition, neurofibromatosis, wants his bulging right buttock to be surgically removed. For…

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Paediatric brain tumours occur more often in children with common genetic syndrome – Brain Tumour Research

According to a study carried out by the Washington University School of Medicine, the frequency of brain…

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Milton Keynes celebrates six inspirational young children at special awards ceremony – Milton Keynes Citizen

Six children who have overcome huge personal challenges have been recognised at a special awards ceremony. The…

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