Motor Neurone Disease

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Carer whose husband died from motor neurone disease turned her grief into a way to help others – and is now up for a top award – St Helens Star

A WOMAN who quit her job to care for her husband with motor neurone disease has been…

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Changemakers: Julius Sweetland is unlocking technology for people with motor neurone disease – Big Issue

It took a neck brace, internet strangers and being bored at work, but Julius Sweetland changed thousands…

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Giving a voice to my friend’s songs – BBC News

Bernie Dalton always wanted to record an album of his songs. But when he lost his voice…

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Artist crafts Doddie Weir portrait from 10,000 stamps – BBC News

An artist has made a portrait of Scottish rugby legend Doddie Weir entirely from 10,000 stamps. Michael McGee’s…

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Cannabinoids could help manage spasticity in motor neurone disease – The Pharmaceutical Journal

After six weeks, researchers found that patients using an oromucosal spray containing delta-9-tetrahydrocannabinol and cannabidiol had improved…

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John Cooper resented being his disabled wife’s carer – Bournemouth Echo

A callous husband who turned off the power of his disabled wife’s wheelchair because he resented being…

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Lenny Johnrose staying positive in motor neurone disease fight – BBC Sport

Lenny Johnrose understands how people with motor neurone disease can sink into depression. He has been there himself. Yet…

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Terminally ill mum writes 35 years of birthday cards – BBC News

A mother who is terminally ill with motor neurone disease has written enough birthday cards for her…

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Terminally-ill Shrewsbury man Noel Conway pens two books – Shropshire Star

The motor neurone disease (MND) sufferer has released Tales from the Hill, which will be followed shortly…

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New drug to treat motor neurone disease – SBS News

Australian researchers have developed a groundbreaking drug which holds hope of treating the debilitating and fatal motor…

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Dorset County Council has adopted the motor neurone disease charter – Dorset Echo

A council has adopted a charter to help raise awareness and improve services for people with motor…

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Mum with rare disease given one year to live writes enough birthday cards for five-year-old daughter to last until she is 40 – Nottinghamshire Live

A Nottingham mum who has been told she has just one year to live has written birthday…

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A family did this wonderful tribute to a grandfather diagnosed with motor neurone disease – Wales Online

For one Carmarthenshire grandfather, one Boxing Day event had become an annual tradition. Vic Buffrey, from Kidwelly, has…

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A fungus found in grass could be behind Motor Neuron Disease – ABC Local

A group of Australian doctors and scientists believes they’ve found the cause of up to 90 per…

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I’m trapped in a body that’s shutting down – Plymouth Live

When Paula was first told she had a terminal illness, the first thing she said was “how…

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HIV drugs could help treat patients with Motor Neurone Disease – Independent.ie

Irish patients with Motor Neurone Disease (MND) may soon be treated with medications originally intended for long-term…

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Zebrafish help unlock mystery of motor neurone disease – The University of Sheffield

The breakthrough will help to accelerate pioneering research and experimental drug trials to tackle the degenerative disease. Until…

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Terminally-ill man who was told he was fit to work backs campaign for easier access to benefits – Eastern Daily Press

A motor neurone disease (MND) sufferer was told he was fit to work by benefits assessors despite…

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Motor neurone disease: Joe Hammond’s birthday legacy for sons – BBC News

For any parent the prospect of not living to see your children grow up is heartbreaking. That’s the…

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Before he died, Dr Ian Davis wrote a farewell message we all need to read. – Mamamia

On Thursday November 1, 2018, Dr Ian Davis died after seven years with motor neurone disease. In the…

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Bedford woman suffering Motor Neurone Disease is fundraising to find a cure – Bedford Today

A Bedford woman diagnosed with Motor Neurone Disease earlier this year is busy raising funds and awareness.…

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Stars pay tribute to motor neurone disease sufferer Weir – BBC Sport

Former British and Irish Lions and Scotland team-mates are among those to pay tribute on Scrum V…

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Man with advanced Motor Neurone Disease abseils underground – BBC News

A father-of-two with advanced Motor Neurone Disease has abseiled more than 100ft deep underground. Jason Liversidge, 42, from…

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Rugby hero Doddie Weir’s £250,000 donation set to boost motor neurone disease research – Scottish Daily Record

A £250,000 donation from Scots rugby hero Doddie Weir’s charity will boost research into drugs which could…

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Stephen Darby: Motor neurone disease diagnosis forces Bolton full-back to retire – BBC Sport

Bolton defender Stephen Darby has announced his retirement from football, aged 29, after being diagnosed with motor…

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Why this grandmother of seven battling motor neurone disease backs calls for right to die – Daily Post North Wales

A former headteacher diagnosed with a degenerative condition is calling for a change in the law to…

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Wheelchair user completes Great East Run in support of Motor Neurone Disease. – East Anglian Daily Times

David Cooper took on the half-marathon this weekend as part of a 29 mile challenge to raise…

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Malcolm’s mission to help MND sufferers – Shropshire Star

Still in her early 60s, she was a well-known figure in the village of Alveley, near Bridgnorth. “She…

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Volunteers rebuild Cradley home for dad with Motor Neurone’s Disease – Malvern Gazette

A GROUP of volunteers have rebuilt a family home for a dad who has Motor Neurone’s Disease. Electrician…

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Len Johnrose: ‘I’m not afraid of dying’ – ex-player on living with motor neurone disease – BBC Sport

There is no cure for motor neurone disease. Half of those affected die within two years of being…

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Band of Builders helps motor neurone disease patient – BBC News

A woman says she is “over the moon” that a charity is renovating the family home after…

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New Scottish drug trial for motor neurone disease – BBC News

A charity has announced the launch of the first motor neurone disease (MND) clinical drug trial in…

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‘It was always the dream’: Family opens cafe in memory of mum who fought ‘unbearable’ disease – News Shopper

A father from Crayford has described the “unbearable suffering” caused by motor neurone disease as he sets…

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Glasgow to trial first new Motor Neurone Disease drug in ‘historic moment’ – Evening Times

A NEW drug that could help combat the degenerative condition motor neurone disease (MND) is being trialled…

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Campaigners hail clinical drug trial in ‘fightback’ against motor neurone disease in Scotland – Scottish Daily Record

A clinical drug trial is being hailed as a “historic moment in the fightback against motor neurone…

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Dad of two, 40, diagnosed with motor neurone disease says he is ‘happy to take the burden’ for his family – iNews

For the last seven months personal trainer and chartered accountant Alex Gibson has been on an emotional…

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How Cash for the Community could help people with motor neurone – Cambridge News

Cash from a community campaign would help people living with motor neurone disease (MND) in Cambridgeshire have…

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Unlocking the mystery of Motor Neurone Disease – ABC News

Professor Dominic Rowe is a neurologist at Sydney’s Macquarie University specialising in neurodegenerative diseases. Most of his patients…

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Council urged to do more to help people with Motor Neurone Disease – Dorset Echo

Dorset county councillors have been asked to do more to support victims of Motor Neurone Disease. Dr Richard…

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Cambs County Council pledges support for people with motor neurone disease – Royston Crow

Cambridgeshire County Council unanimously backed a motion to support the motor neurone disease charter on Tuesday last…

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Motor Neurone Disease is ‘a nightmare but I’m adapting’, says priest – The Irish Times

At 9.30am on Tuesday, Fr Tony Coote (54) will set off from Letterkenny, Co Donegal, on a…

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Anglers set to help beat Motor Neurone Disease in memory of Anne Walker – The Press, York

AN ANGLER whose wife died of Motor Neurone Disease is hoping to raise thousands to help others…

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Council gives backing to Motor Neurone Disease campaign – Basingstoke Gazette

BASINGSTOKE and Deane Borough Council has pledged its support to residents with an incurable disease by signing…

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Doncaster Council hears the voice of people with Motor Neurone Disease – Doncaster Council

Developed by the Motor Neurone Disease Association, the Charter is a statement of the respect, care and…

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Dumfriesshire gran refuses to bow to Motor Neurone Disease – Scottish Daily Record

An Annan gran robbed of her ability to speak has taken on the challenge of raising awareness…

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ScotRail train to be named after Motor Neurone Disease campaigner – RailAdvent

ScotRail have announced that they are to name one of their trains after Gordon Aikman, who is…

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Fightback dinner celebrates the youngest person in Scotland living with MND – The Scotsman

A dinner is to be held tonight in memory of Motor Neurone Disease campaigner Gordon Aikman to…

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“I’m one of the lucky ones”: Pat is determined not to give in to motor neurone disease – The Courier

Pat Orr has lived a proudly independent life. With an active work and social life, no-fuss attitude…

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West Lothian grandfather wants to tackle misconceptions of Motor Neurone Disease – Scottish Daily Record

A West Lothian grandfather diagnosed with Motor Neurone Disease wants to tackle misconceptions of the illness. Jimmy Graham…

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Devoted Scots wife lays bare harsh reality of Motor Neurone Disease but insists husband’s illness isn’t a death sentence – The Scottish Sun

A DEVOTED wife has laid bare the harsh reality of Motor Neurone Disease — but insists her…

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