NHS to offer ‘world’s most expensive’ £1.8m-a-dose drug to cure baby spinal disease – Daily Mail March 19, 2023
‘Miracle cure’ for spinal disorder rolled out on NHS – but babies still face paralysis – The Mirror March 19, 2023
How advances are changing the standard of care for patients with spinal muscular atrophy – Pharmafield September 2, 2020
Thinking Outside the Box to Support My Son With Spinal Muscular Atrophy – Yahoo Lifestyle August 11, 2020
Phase 4 Nusinersen Trial Underway in Infants, Children With Spinal Muscular Atrophy – Pharmacy Times July 28, 2020
Girl struggling to walk denied NHS drug because she took one step too few – Liverpool Echo June 23, 2020
This Influencer Has Spinal Muscular Atrophy Type 2 and It Inspired Her to Make a Size-Inclusive Clothing Line – Health.com April 12, 2020
Should Biogen’s Spinraza for SMA be delayed amid COVID-19? No, say these parents – FiercePharma March 28, 2020
Composite materials help bring revolutionary exoskeleton to life – British Plastics and Rubber March 8, 2020
Toddler with fatal illness ‘recovers’ after $2m infusion of world’s dearest drug – Metro.co.uk February 27, 2020
Treatment with Risdiplam Improves Motor Function in Spinal Muscular Atrophy – Drug Topics February 10, 2020
Roche’s risdiplam achieves endpoint in spinal muscular atrophy trial – Pharmaceutical Business Review January 24, 2020
Ill boy, 2, dies after ‘cruel dad blows £115,000 crowdfunding donations on brothels, luxury holidays and drugs – The Sun October 31, 2019
Woman with spinal muscular atrophy has her life transformed with the help of her Labrador – Daily Mail October 7, 2019
‘Children’s services need to integrate to improve – here’s how’ – Communitycare.co.uk September 14, 2019
The devastating reason Scott Morrison has stood behind children battling spinal muscular atrophy – Daily Mail August 27, 2019
