NHS to offer ‘world’s most expensive’ £1.8m-a-dose drug to cure baby spinal disease – Daily Mail March 19, 2023
‘Miracle cure’ for spinal disorder rolled out on NHS – but babies still face paralysis – The Mirror March 19, 2023
Living with Spinal Muscular Atrophy: Navigating the emotional pathway of the condition – The Financial Express February 28, 2023
Nusinersen treatment improves spinal muscular atrophy patients’ walking distance – News-Medical.Net February 17, 2023
Improving Outcomes in Spinal Muscular Atrophy Through Early Identification and Personalization of Care – Neurology Live December 21, 2022
Paediatric patient with spinal muscular atrophy to get first gene therapy in BD – The Financial Express October 27, 2022
Should Treatment for Spinal Muscular Atrophy Be Initiated Earlier? – Neurology Advisor October 18, 2022
At a fashion show for people with spinal muscular atrophy, models take back their own stories – STAT September 20, 2022
Philadelphia girl with Spinal Muscular Atrophy beats odds, walks in fashion show ahead of New York Fashion Week – WPVI-TV August 31, 2022
Listing breakthrough brings hope for people with spinal condition – The Sydney Morning Herald August 18, 2022
FDA approves Roche's Evrysdi for use in babies under two months with spinal muscular atrophy (SMA) – StreetInsider June 3, 2022
University of Oxford: First UK pilot study of newborn screening for spinal muscular atrophy launched in Oxford – India Education Diary March 18, 2022
First UK pilot study of newborn screening for spinal muscular atrophy launched in Oxford – University of Oxford March 15, 2022
Emirati girl with spinal muscular atrophy takes her first few steps at Abu Dhabi long-term care hospital – Gulf News February 24, 2022
Baby given months to live may now outlive parents – after receiving world’s most expensive drug – National World February 8, 2022
