New Treatment for Neurofibromatosis Could Completely Change Patients’ Lives — Green Matters May 13, 2023
New Treatment for Neurofibromatosis Could Completely Change Patients’ Lives — Green Matters May 13, 2023
Seemingly innocent birthmarks led to Nikkita’s lifelong diagnosis. Then they appeared on her kids — 9Honey May 3, 2023
Low Bone Mass and Recurrent Fractures in Neurofibromatosis With Concomitant Hemoglobin SC Disease — Cureus May 3, 2023
Thomas Young went from not knowing why he couldn’t ride a bike to Paralympic gold and MBE – Daily Star September 23, 2022
Adam Pearson: does Celebrity MasterChef contestant have a wife, what is neurofibromatosis – who is his twin? – NationalWorld September 9, 2022
Family warn parents to look out for ‘obvious spots’ after boy, 5, diagnosed with brain tumour – Nottinghamshire Live September 7, 2022
Sebastian Stan stuns fans with facial transformation into a man with neurofibromatosis for new film – The Independent August 17, 2022
Celebrity MasterChef 2022 contestant Adam Pearson’s condition and the childhood symptoms – Leicestershire Live August 14, 2022
First look! Sebastian Stan portrays man with neurofibromatosis type I with dramatic prosthetics – Daily Mail August 14, 2022
I lost my eyeball to a rare illness, now I'm a comedy sensation on TikTok – New York Post July 7, 2022
Symptoms and signs of neurofibromatosis by Australian mum who noticed strange detail in son's reflection – Verve times February 16, 2022
Hayley lives with neurofibromatosis. She has learnt to 'breathe' through the pain caused by constant tumours – ABC November 27, 2021
Changing Faces urge James Bond franchise to stop facial disfigurements for villians – Herald Scotland September 29, 2021
Gilbert Family Foundation Funds Clinical Study to Understand Vision Loss from NF1 Optic Pathway Glioma – Yahoo Finance September 15, 2021
Scientists inch closer to developing blood test for certain nerve cancers – Philly Voice September 14, 2021
In a common genetic disorder, blood test reveals when benign tumors turn cancerous – National Institutes of Health September 4, 2021
Dad’s pride as inspirational teen son with challenging health conditions wins award for his courage – Lincolnshire Live August 11, 2021
