Specialized motion-capture suits may help predict FA progression – Friedreich’s Ataxia News March 2, 2023
My perspective on disability and loss as someone who was ‘born this way’ – SMA News Today March 2, 2023
Specialized motion-capture suits may help predict FA progression – Friedreich’s Ataxia News March 2, 2023
My perspective on disability and loss as someone who was ‘born this way’ – SMA News Today March 2, 2023
A patient’s perspective on the 1st Friedreich’s ataxia treatment – Friedreich’s Ataxia News March 2, 2023
New Mouse Models Developed of Rare Mutation Seen in Some Patients – Friedreich’s Ataxia News February 2, 2023
These passengers aren’t going up in the world! Train station has had no working lift for 35 years – Daily Mail January 20, 2023
Disabled woman ’embarrassed by ScotRail’ after pals forced to carry her off train — Yahoo News UK October 20, 2022
When Speaking Up About Accessibility Problems Leads to Change – Friedreich's Ataxia News February 23, 2022
Self-awareness Helps Me Navigate the Unexpected in Life With FA – Friedreich's Ataxia News February 5, 2022
24-Year-Old Researches Treatment for Her Own Crippling Disease: 'I'm in a Race Against Time' – PEOPLE December 4, 2021
I No Longer Let Fear of the Future Control My Life With FA – Friedreich's Ataxia News November 9, 2021
Do People Want to Hang Out With Progressive Disease Patients? – Friedreich’s Ataxia News July 23, 2021