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Ataxia

First Patient Dosed with Leriglitazone in Ongoing FRAMES Trial in FA – Friedreich’s Ataxia News

A patient with Friedreich’s ataxia has been dosed with Minoryx Therapeutics’ investigational therapy leriglitazone in the ongoing…

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Rain Won’t Stop Us from Curing FA! – Friedreich’s Ataxia News

After months of planning and executing, my family’s grassroots event, the 7th Annual Mother’s Day 5K Race…

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On FA Awareness Day, Friedreich’s Ataxia Research Advocate Is Upbeat – Friedreich’s Ataxia News

“Excited and beyond belief” is how Ron Bartek, co-founder and president of the Friedreich’s Ataxia Research Alliance…

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Wishing Away Friedreich’s Ataxia – Friedreich’s Ataxia News

Friedreich’s ataxia (FA) is a heavy diagnosis. It is a relentlessly cruel progressive disease without a treatment…

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On Being a Bridesmaid for a Day with Friedreich’s Ataxia – Friedreich’s Ataxia News

I remember feeling overjoyed and honored a year ago after I received a package in the mail….

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Risca man completes Barnardo’s On Your Bike charity ride despite being unable to walk – South Wales Argus

A NEWPORT man who suffers from spinal cerebellar ataxia and is unable to walk unaided has completed…

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What to do in neurologic emergencies – Contemporary Pediatrics

Whereas neurologic problems are common in pediatric practice, pediatric neurologic emergencies are relatively uncommon. It is essential…

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Welcome to a ‘Candy Shell Life’ – Friedreich’s Ataxia News

“I can tell that you are really strong and that you can take it,” she said. “So…

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Little Victories Really Matter with FA – Friedreich’s Ataxia News

Despite all of the challenges in my way, I choose to fight, to endure. I hope you…

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It’s OK to Accept Help When You Need It – Friedreich’s Ataxia News

Living in a major city like Philadelphia, my go-to mode of transportation is the subway or the…

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It’s Time: I’ve Decided to Go Back to Work – Friedreich’s Ataxia News

When I was in college, my goal was to work in professional sports in marketing or sales….

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Accountability Can Change Everything – Friedreich’s Ataxia News

I want to give credit to this column, and the writing habit I have developed because of…

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I’m Trying a Different Approach to Fitness – Friedreich’s Ataxia News

Lately, I’ve been finding it difficult to go to my local gym. It’s accessible, so that’s not…

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Thankful to Get Expert FA Care for My Checkup – Friedreich’s Ataxia News

I had my annual Friedreich’s ataxia checkup last week at Children’s Hospital of Philadelphia, which hosts a…

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Waiting to Meet My New Service Dog – Friedreich’s Ataxia News

I first encountered a service dog accompanying a person with Friedreich’s ataxia (FA) three years ago. I…

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Disability activists urge people to recognise the importance of changing facilities – Leader Live

FACILITIES enabling disabled adults to get changed are a human right, a campaigner has said. A meeting was…

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New Friedreich’s Ataxia Platform Enables Collaborative Data Sharing – Friedreich’s Ataxia News

A new data-sharing platform recently launched by the Critical Path Institute’s (C-Path) Data Collaboration Center (DCC) and…

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Introducing ‘No Good Excuse,’ a New Friedreich’s Ataxia Column – Friedreich’s Ataxia News

I’m convinced that we all think we’re unique in the following regard: Something about who we are,…

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Death, My Constant Companion – Friedreich’s Ataxia News

Sitting at my computer in my room, I barely noticed that everything had gotten dimmer. It wasn’t…

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Using Both a Walker and a Wheelchair – Friedreich’s Ataxia News

“Weren’t you just in a wheelchair? Why are you using a walker now? Are you getting better?…

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