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Ataxia

A Plan for Parenthood: 4 Things We Considered – Friedreich’s Ataxia News

It is hard to believe that July has come and gone, and that the summer season is…

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FA Allows Me to See Underwater and Face Its Uncomfortable Elements – Friedreich’s Ataxia News

“I’d give all of my degrees to write as powerfully as Melville,” Dr. Cicardo mused. She had…

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4 Physical Therapy Strategies That Help Me – Friedreich’s Ataxia News

Since receiving my diagnosis of Friedreich’s ataxia (FA) back in 2011, I have attended two series of…

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Refusing to Surrender to FA: A Postcard from the Island of Misfit Toys – Friedreich’s Ataxia News

Finding a job when you are disabled is challenging. The search leads to frustration, and in my…

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Canine companion helps man with rare genetic disorder that leaves him confined to a wheelchair – Daily Mail

A man with a rare genetic disorder that left him wheelchair-bound has gained some independence back thanks…

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Iron, Copper Levels in Blood Abnormally Low in Friedreich’s Ataxia, Study Finds – Friedreich’s Ataxia News

High uptake of iron and copper by cells, caused by an insufficiency of frataxin — the protein…

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Breaking the System of FA – Friedreich’s Ataxia News

The first time I broke the system, I was thrilled. It was a high I’d never experienced…

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Excuses Keep Us from Being Ourselves – Friedreich’s Ataxia News

Last week, I had the privilege of co-hosting a panel discussion centered around living with a rare…

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Living a Nomad’s Life in One Place – Friedreich’s Ataxia News

My nomadic lifestyle was always something I loved about myself. For some reason, I memorized a senior…

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Methylprednisolone Shows No Clear Benefit for FA Patients in Pilot Trial – Friedreich’s Ataxia News

Treatment with methylprednisolone, an anti-inflammatory medication, had no evident benefit in children and adults with Friedreich’s ataxia…

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Excuses Keep Us from Doing the Right Thing – Friedreich’s Ataxia News

Some months ago, I went looking for a new apartment for my friend and me to rent…

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FA Patients May Benefit From MS Therapy Dimethyl Fumarate, Study Says – Friedreich’s Ataxia News

Dimethyl fumarate, an approved therapy for multiple sclerosis (MS), may help people with Friedreich’s ataxia by increasing…

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Reassessing Is Often Better than Surrendering – Friedreich’s Ataxia News

We are just about halfway through 2019. I think this is a great time to evaluate my…

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First Patient Dosed with Leriglitazone in Ongoing FRAMES Trial in FA – Friedreich’s Ataxia News

A patient with Friedreich’s ataxia has been dosed with Minoryx Therapeutics’ investigational therapy leriglitazone in the ongoing…

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Rain Won’t Stop Us from Curing FA! – Friedreich’s Ataxia News

After months of planning and executing, my family’s grassroots event, the 7th Annual Mother’s Day 5K Race…

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On FA Awareness Day, Friedreich’s Ataxia Research Advocate Is Upbeat – Friedreich’s Ataxia News

“Excited and beyond belief” is how Ron Bartek, co-founder and president of the Friedreich’s Ataxia Research Alliance…

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Wishing Away Friedreich’s Ataxia – Friedreich’s Ataxia News

Friedreich’s ataxia (FA) is a heavy diagnosis. It is a relentlessly cruel progressive disease without a treatment…

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On Being a Bridesmaid for a Day with Friedreich’s Ataxia – Friedreich’s Ataxia News

I remember feeling overjoyed and honored a year ago after I received a package in the mail….

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Risca man completes Barnardo’s On Your Bike charity ride despite being unable to walk – South Wales Argus

A NEWPORT man who suffers from spinal cerebellar ataxia and is unable to walk unaided has completed…

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What to do in neurologic emergencies – Contemporary Pediatrics

Whereas neurologic problems are common in pediatric practice, pediatric neurologic emergencies are relatively uncommon. It is essential…

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