Friedreich’s ataxia

An Open Letter to My Parents — Friedreich’s Ataxia News

Kendall’s family. Back row, from left: her husband, Kyle; her father, David;…

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FA Diagnosis That Once Took Years Could Take Days With New DNA Test – Friedreich’s Ataxia News

A new DNA test has been developed to simultaneously screen for more than 50 genetic…

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When Speaking Up About Accessibility Problems Leads to Change – Friedreich’s Ataxia News

  Hello there! It was one year ago this month that I…

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Self-awareness Helps Me Navigate the Unexpected in Life With FA – Friedreich’s Ataxia News

  Since I began my Friedreich’s ataxia (FA)…

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24-Year-Old Researches Treatment for Her Own Crippling Disease: ‘I’m in a Race Against Time’ – PEOPLE

  What Florida native Shandra Trantham dreams of most is…

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I’m Not Alone in Carrying the Burden of FA – Friedreich’s Ataxia News

Kendall Harvey is flanked by members of Team Kendall at rideATAXIA Dallas…

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I No Longer Let Fear of the Future Control My Life With FA – Friedreich’s Ataxia News

The first thing I experienced after my Friedreich’s ataxia (FA) diagnosis in 2013 was fear…

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In Search of Peace, Love, and a Cure for FA – Friedreich’s Ataxia News

Hello, everyone! I am so grateful you are taking a few moments of your day…

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I’m Learning the Balance Between Giving and Receiving – Friedreich’s Ataxia News

From left, Allan, James, Matt, and Damon take a break between shoots…

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How I Hiked Down the Grand Canyon in a Wheelchair – Friedreich’s Ataxia News

“Look, Ma, no wheels!” Matt, second from right, with friends at the…

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Do People Want to Hang Out With Progressive Disease Patients? – Friedreich’s Ataxia News

I’m no stranger to this question, but I wasn’t the one who posed it recently. Ever…

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Finding the Rose Among the Thorns of Rare Disease – Friedreich’s Ataxia News

  Today at work I participated in…

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Keeping Hope Alive With New Treatment Research – Friedreich’s Ataxia News

Research into my rare disorder, Friedreich’s ataxia (FA), seems to me to be on the…

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I’ve Found Protein Powder Helpful in Managing My Daily Diet – Friedreich’s Ataxia News

  Protein is necessary for the human…

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Why I Believe It’s Important to Look a Stranger in the Eye – Friedreich’s Ataxia News

I’m not proud of this, but I often avoid looking strangers in the eye. An…

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As Parents and Caregivers, We Can Find Beauty in Life With FA – Friedreich’s Ataxia News

Welcome back! I wish we could have this conversation face-to-face over a cup of coffee….

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Next: I’m Thankful for Friends I Met Before and After My Diagnosis – Friedreich’s Ataxia News

Friedreich’s ataxia (FA) changed every aspect of me — the emotional, the physical, the spiritual,…

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How My New Approach to Spirituality Helps Me Cope With FA – Friedreich’s Ataxia News

  Religion and spirituality have always been tricky…

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As Parents and Caregivers, We Can Find Beauty in Life With FA – Friedreich’s Ataxia News

Welcome back! I wish we could have this conversation face-to-face over a cup of coffee….

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TO YOUR HEALTH: Exercise may offer ‘profound’ benefits for Friedreich’s ataxia – Hockessin Community news

  A top exercise researcher at the University…

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