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Ataxia

Little Victories Really Matter with FA – Friedreich’s Ataxia News

Despite all of the challenges in my way, I choose to fight, to endure. I hope you…

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It’s OK to Accept Help When You Need It – Friedreich’s Ataxia News

Living in a major city like Philadelphia, my go-to mode of transportation is the subway or the…

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It’s Time: I’ve Decided to Go Back to Work – Friedreich’s Ataxia News

When I was in college, my goal was to work in professional sports in marketing or sales….

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Accountability Can Change Everything – Friedreich’s Ataxia News

I want to give credit to this column, and the writing habit I have developed because of…

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I’m Trying a Different Approach to Fitness – Friedreich’s Ataxia News

Lately, I’ve been finding it difficult to go to my local gym. It’s accessible, so that’s not…

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Thankful to Get Expert FA Care for My Checkup – Friedreich’s Ataxia News

I had my annual Friedreich’s ataxia checkup last week at Children’s Hospital of Philadelphia, which hosts a…

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Waiting to Meet My New Service Dog – Friedreich’s Ataxia News

I first encountered a service dog accompanying a person with Friedreich’s ataxia (FA) three years ago. I…

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Disability activists urge people to recognise the importance of changing facilities – Leader Live

FACILITIES enabling disabled adults to get changed are a human right, a campaigner has said. A meeting was…

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New Friedreich’s Ataxia Platform Enables Collaborative Data Sharing – Friedreich’s Ataxia News

A new data-sharing platform recently launched by the Critical Path Institute’s (C-Path) Data Collaboration Center (DCC) and…

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Introducing ‘No Good Excuse,’ a New Friedreich’s Ataxia Column – Friedreich’s Ataxia News

I’m convinced that we all think we’re unique in the following regard: Something about who we are,…

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Death, My Constant Companion – Friedreich’s Ataxia News

Sitting at my computer in my room, I barely noticed that everything had gotten dimmer. It wasn’t…

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Using Both a Walker and a Wheelchair – Friedreich’s Ataxia News

“Weren’t you just in a wheelchair? Why are you using a walker now? Are you getting better?…

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How to Plan a Grassroots FA Event – Friedreich’s Ataxia News

Rare Disease Day was observed on Feb. 28. However, we don’t have to limit our advocacy to…

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I’ve Learned to Face My Reality While Hoping for an FA Cure – Friedreich’s Ataxia News

I’ve been down this road before and it doesn’t end up anywhere good. Following that thought, I swallowed…

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Being confined to a wheelchair has not stopped this Leicester globetrotter from visiting 35 countries – Leicestershire Live

Wanderlust is a strange and powerful impulse, and one that’s driven many a restless young Brit over…

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An FAer’s Reflection on Rare Disease Day – Friedreich’s Ataxia News

The theater was packed. It was unseasonably warm for February in Washington, D.C., and my Cajun blood…

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Alone We Are Rare, but Together We Are Strong – Friedreich’s Ataxia News

People around the world observed Rare Disease Day on Thursday, which gives patients, caregivers, and advocates the…

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Becoming Dependent Restored My Independence – Friedreich’s Ataxia News

One of the scariest life changes a patient anticipates upon receiving a diagnosis of Friedreich’s ataxia is…

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Cellular Therapy heals rare neurological disease Friedrich’s Ataxia – Daily Pioneer

Dr Pradeep Mahajan, regenerative medicine researcher, Adigos Stem Cells, Mumbai treated Mangal Swarnkar from Jharkhand who was…

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The Hopes and Risks of Starting a Friedreich’s Ataxia Clinical Trial – Friedreich’s Ataxia News

When diagnosed with Friedreich’s ataxia, the first things people usually ask are: “What can I do about…

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