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Ataxia

FA Allows Me to See Underwater and Face Its Uncomfortable Elements – Friedreich’s Ataxia News

“I’d give all of…

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4 Physical Therapy Strategies That Help Me – Friedreich’s Ataxia News

Since receiving my diagnosis of…

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Refusing to Surrender to FA: A Postcard from the Island of Misfit Toys – Friedreich’s Ataxia News

Finding a job when you…

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Canine companion helps man with rare genetic disorder that leaves him confined to a wheelchair – Daily Mail

A man with a rare genetic disorder that left…

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Iron, Copper Levels in Blood Abnormally Low in Friedreich’s Ataxia, Study Finds – Friedreich’s Ataxia News

High uptake of iron and copper by cells, caused…

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Breaking the System of FA – Friedreich’s Ataxia News

The first time I…

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Excuses Keep Us from Being Ourselves – Friedreich’s Ataxia News

Last week,…

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Living a Nomad’s Life in One Place – Friedreich’s Ataxia News

My nomadic lifestyle was always…

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Methylprednisolone Shows No Clear Benefit for FA Patients in Pilot Trial – Friedreich’s Ataxia News

Treatment with methylprednisolone, an anti-inflammatory medication, had no evident…

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Excuses Keep Us from Doing the Right Thing – Friedreich’s Ataxia News

Some months ago, I went looking for a new…

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FA Patients May Benefit From MS Therapy Dimethyl Fumarate, Study Says – Friedreich’s Ataxia News

Dimethyl fumarate, an approved therapy for multiple sclerosis (MS),…

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Reassessing Is Often Better than Surrendering – Friedreich’s Ataxia News

We are just about halfway through 2019. I think…

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First Patient Dosed with Leriglitazone in Ongoing FRAMES Trial in FA – Friedreich’s Ataxia News

A patient with Friedreich’s ataxia has been dosed with…

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Rain Won’t Stop Us from Curing FA! – Friedreich’s Ataxia News

After months of planning and executing, my family’s grassroots event, the 7th Annual Mother’s Day 5K Race…

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On FA Awareness Day, Friedreich’s Ataxia Research Advocate Is Upbeat – Friedreich’s Ataxia News

“Excited and beyond belief” is how Ron Bartek, co-founder and president of the Friedreich’s Ataxia Research Alliance…

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Wishing Away Friedreich’s Ataxia – Friedreich’s Ataxia News

Friedreich’s ataxia (FA) is a heavy diagnosis. It is a relentlessly cruel progressive disease without a treatment…

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On Being a Bridesmaid for a Day with Friedreich’s Ataxia – Friedreich’s Ataxia News

I remember feeling overjoyed and honored a year ago after I received a package in the mail….

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Risca man completes Barnardo’s On Your Bike charity ride despite being unable to walk – South Wales Argus

A NEWPORT man who suffers from spinal cerebellar ataxia and is unable to walk unaided has completed…

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What to do in neurologic emergencies – Contemporary Pediatrics

Whereas neurologic problems are common in pediatric practice, pediatric neurologic emergencies are relatively uncommon. It is essential…

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Welcome to a ‘Candy Shell Life’ – Friedreich’s Ataxia News

“I can tell that you are really strong and that you can take it,” she said. “So…

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