Ataxia

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Iron-induced Cell Death May Play Key Role in FA, Study Suggests – Friedreich’s Ataxia News

Iron-induced cell death may contribute to the progression of Friedreich’s ataxia, a study in human and mice…

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The Anchor on My Wheelchair from My Steadfast FA Friend – Friedreich’s Ataxia News

A small wooden trinket hangs on the back of my wheelchair. It’s a navy blue anchor with…

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The Power Behind the Friedreich’s Ataxia Patient Registry – Friedreich’s Ataxia News

Last month, I attended a PTC Therapeutics meeting with two other Friedreich’s ataxia patients named Kyle Bryant…

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Sometimes with Friedreich’s Ataxia, I’d Prefer to Be Invisible – Friedreich’s Ataxia News

Sometimes we prefer not to be seen. I know how that feels. Growing up, I loved being…

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Similarities in Parenting and Friedreich’s Ataxia – Friedreich’s Ataxia News

At first, I resented having Friedreich’s ataxia (FA) because it hasn’t allowed me to be the mom…

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Setting a New Trend with Adaptive Wear – Friedreich’s Ataxia News

Everyone has a morning routine, a plan that sets the mood for the day. Most people become…

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I’m Right Where I’m Supposed to Be – Friedreich’s Ataxia News

This isn’t where I’m supposed to be, I thought. My power wheelchair’s mechanic whine echoed through the…

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A Friedreich’s Ataxia Explainer: Genetic Cause, Symptoms, and Progression – Friedreich’s Ataxia News

Describing a progressive genetic disease like Friedreich’s ataxia (FA) is difficult. It has a wide range of…

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Correcting Just Half the Heart Muscle Cells Fully Restores Cardiac Function in Friedreich’s Ataxia Mice – Friedreich’s Ataxia News

A gene therapy approach to increase the amount of the critical frataxin protein shows that correcting only…

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‘Bird Box’ Is Worth the Hype, Especially for the Disabled – Friedreich’s Ataxia News

Spoiler alert: In this column, I’ll review the popular Netflix movie “Bird Box.” I explore the movie’s…

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New Year, New Beginnings – Friedreich’s Ataxia News

An approaching new year means multiple things to different people. A new year can mean starting over…

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A New Year’s Resolution I Can Keep – Friedreich’s Ataxia News

“What’s your resolution?” This time of year, redefinition is almost a buzzword. Resolutions and goals are a hailstorm…

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Surviving the In-between Moments – Friedreich’s Ataxia News

On any typical day at my middle school, the closer you were to the bench, the higher…

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Introversion as an Excuse – Friedreich’s Ataxia News

Sometimes I use my introversion as an excuse. It’s safe and secure; it’s familiar not to expose…

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Answering the Questions Friends Ask Most Often About My Friedreich’s Ataxia – Friedreich’s Ataxia News

Over the past couple of weeks, I’ve had some good conversations with FAers and others about life….

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I Apologize for Going Dark – Friedreich’s Ataxia News

Do you ever experience times when being social in any form is out of the question? When…

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Finding Reasons to Stay Alive – Friedreich’s Ataxia News

Drowsily and with great effort, I hoisted the top half of my body upright in the hotel…

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My Journey to a Friedreich’s Ataxia Diagnosis, Part 3 – Friedreich’s Ataxia News

Third and final in a series. In a previous column, I discussed the tests I underwent to…

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A Physical Therapist Shares Her Perspective on Working with FA Patients – Friedreich’s Ataxia News

I have been working with my physical therapist, Kelli, for a year and a half. She is…

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Answering the Questions Friends Ask Most Often About My Friedreich’s Ataxia – Friedreich’s Ataxia News

Over the past couple of weeks, I’ve had some good conversations with FAers and others about life….

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4 Tips for Preparing to Attend a Football Game – Friedreich’s Ataxia News

Navigating huge crowds at major events can cause great anxiety. For example, going to an arena concert…

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10 Lessons I’ve Learned from Having FA – Friedreich’s Ataxia News

It’s funny how cliches about life have started to make sense to me. From my observations of…

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Don’t Let Fear of Missing Out Spoil Your Trip – Friedreich’s Ataxia News

My husband Justin and I returned last week from our honeymoon in the Bahamas following our beautiful…

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Vibration Device Fails to Halt Motor Deterioration in Children with Friedreich’s Ataxia, Small Study Shows – Friedreich’s Ataxia News

Muscle stimulation through focal vibrations produced by a specialized device may prevent further deterioration of motor function…

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The Caribbean Was the Perfect Spot to Set Aside My Fierce Independence – Friedreich’s Ataxia News

“Are you OK up here?” my stepdad asked, coming upstairs from the galley. “Yeah, I’m fine,” I said,…

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Serious Games Can Be Used to Assess Motor Function in Advanced FA Patients, Study Shows – Friedreich’s Ataxia News

Serious games (SG) — video games designed with a primary purpose other than pure entertainment — are…

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6 Tips to Prepare for rideATAXIA, the Big Bike Ride – Friedreich’s Ataxia News

Sweaty palms, excitement, hope, and motivation — I’m preparing to be in position at the starting line…

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New to Friedreich’s Ataxia? Some Advice for the Newly Diagnosed – Friedreich’s Ataxia News

The first time I ever heard of Friedreich’s ataxia was the day I was diagnosed with the…

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A Letter to My Endlessly Loving Mother – Friedreich’s Ataxia News

Dearest Mom, I wrote this a long time ago, but I wanted to wait for a random day…

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I’m Not Yet Sure How to Fight My Fatigue – Friedreich’s Ataxia News

Friedreich’s ataxia causes a wide array of symptoms. Every FA patient experiences the disease differently. For me,…

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In Case of Emergency, Don’t Have a Disability – Friedreich’s Ataxia News

It wasn’t until a fire alarm at my hotel this past weekend that I realized the complete…

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Daydreaming and Other Ways of Coping – Friedreich’s Ataxia News

“Matt?” my professor repeated for who knows how many times, interrupting the imaginary concert in my head. I…

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Don’t Judge Yourself for Needing Help – Friedreich’s Ataxia News

The three-day Labor Day weekend often means relaxing and spending time with people you may not often…

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Comprehensive MRI-based Study Reveals Brain Changes Linked to Friedreich’s Ataxia – Friedreich’s Ataxia News

A comprehensive evaluation of the brain with magnetic resonance imaging (MRI)-based methods and clinical features of Friedreich’s…

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Seasons of Life with Friedreich’s Ataxia – Friedreich’s Ataxia News

Since my 2013 Friedreich’s ataxia diagnosis, the condition has consumed a part of every day. I was…

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‘Members are doing it for themselves’ in new Ataxia charity after controversial closure – Independent.ie

The man behind a new charity after the closure of controversial Ataxia Ireland has slammed “career CEOs”…

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The Emotional Workout of Physical Therapy – Friedreich’s Ataxia News

In Friedreich’s ataxia (FA) care, we don’t really have treatment options. There are clinical trials taking place…

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Tips for Traveling with Friedreich’s Ataxia – Friedreich’s Ataxia News

When you plan a destination or a weekend getaway, it is wise to make travel and transportation…

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I’m Still Pedaling to Keep My Oath – Friedreich’s Ataxia News

I gritted my teeth. The August sun in south Louisiana pounded unrelentingly onto my head. Drops of…

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Electrical Stimulation Helps Ataxia Symptoms – MedPage Today

Direct current electrical stimulation to the brain and spinal cord appeared effective in treating symptoms of neurodegenerative…

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An Introduction to a ‘Practical Guide to Life with FA’ – Friedreich’s Ataxia News

My name is Christina Logan, and doctors diagnosed me with the rare neuromuscular disorder Friedreich’s ataxia at…

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Hitchin theatre to host star-studded UK premiere of film The Ataxian – The Comet

The UK premiere of The Ataxian, about a long-distance cyclist with Friedreich’s ataxia, is to be held…

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The Day I Began Tracking My ‘Little Victories’ – Friedreich’s Ataxia News

In an instant, my plans and dreams vanished; I was left wandering through life with no set…

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Aussie plant scientists’ discovery points to treatments for major genetic disorder – Xinhua

Australian plant scientists on Friday said they have discovered a new molecular mechanism in genes, a…

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A place at The Open for young golfer who overcame cerebral palsy – The Telegraph

hen Ash Turner developed a rare form of cerebral palsy after a freak childhood accident his parents…

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Britain’s strongest disabled man shares his 17-year battle with ‘invisible disease’ Ataxia – SWNS Stories

These pictures show Britain’s strongest disabled man – who holds the record for lifting stones heavier than…

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Friedreich’s Ataxia Patients Have Altered Connectivity Between Brain Regions, Study Shows – Friedreich’s Ataxia News

People with Friedreich’s ataxia (FA) have alterations in the connectivity of different brain regions, which most likely…

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It’s OK to Be Honest About Your Emotions – Friedreich’s Ataxia News

Last month was Mental Health Awareness Month, so I thought this might be a good time to…

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Cancer Treatment May Be Able to Prevent Heart Problems in Friedreich’s Ataxia, Study Suggests – Friedreich’s Ataxia News

A therapy already approved to treat cancer could potentially be used to prevent heart abnormalities in Friedreich’s…

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For Father’s Day, this Indianapolis dad just wants a cure for his daughter – Indianapolis Star

Virgil Harris would do anything for his daughter, his baby. Doesn’t matter that she’s not a baby…

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