Ataxia

‘United Against Ataxia Hill Day’ Is a Virtual Advocacy Event – Friedreich’s Ataxia News

The third United Against Ataxia Hill Day will take place virtually Sept. 29, an event…

0

Taking Another Friedreich’s Ataxia Setback in Stride – Friedreich’s Ataxia News

Despite using a walker 24/7, taking my clinical trial study treatment daily, getting ample rest,…

0

Patient suffering from Friedreich Ataxia regains mobility with the aid of smart technology – ZAWYA

Sheikh Khalifa Medical City (SKMC), part of Abu Dhabi Health Services Company (SEHA) – the…

0

‘Day Undefined’ Website Helps Patients Locate Adaptive Products – Friedreich’s Ataxia News

Liam Dougherty, who has Friedreich’s ataxia (FA), and Katelyn Leader, whose sister has an undiagnosed…

0

Planning for Tomorrow Is Worth the Effort Today – Friedreich’s Ataxia News

It seems that the best time to plan ahead is always yesterday, or several hours…

0

Neurodegenerative diseases, nanoparticles slow down Friedreich’s ataxia – Emergency Live

Friedreich’s ataxia is a neurodegenerative disease caused by an abnormality in the gene that codes…

0

Friedreich’s Ataxia Is First Target of Oxford-Harrington Partnership – Friedreich’s Ataxia News

  Scientists on either side of the Atlantic have teamed up, through the…

0

New System May Better Measure Walking Problems – Friedreich’s Ataxia News

Researchers have developed a new system that might better measure walking or gait problems in…

0

Navigating Hope and Worry With Friedreich’s Ataxia – Friedreich’s Ataxia News

Kendall and Hank, her Great Dane mobility service dog in training. (Courtesy…

0

His son overcame ataxia to become a college prof. Now, this dad is telling the world stories we need to hear – Edex Live

  When Iftikhar…

0

What My Recumbent Trike Means To Me – Friedreich’s Ataxia News

  As a Friedreich’s ataxia (FA) patient, my…

0

EndFA’s Mobile App Aims to Unite FA Community, ‘Power the Cure’ – Friedreich’s Ataxia News

  The nonprofit EndFA has launched a free mobile phone and tablet app…

0

Stem Cell Therapy Researchers in Australia Awarded 3-Year Grant – Friedreich’s Ataxia News

  Researchers in Australia were awarded a three-year grant to advance the…

0

Potential Gene Therapy for Fridreich’s Ataxia, LX2006, Gets FDA Support – Friedreich’s Ataxia News

  The U.S. Food and Drug Administration (FDA) has given rare pediatric disease…

0

Reminding Myself to Appreciate My Mobility Aid – Friedreich’s Ataxia News

As a Friedreich’s ataxia (FA) patient well along in my symptom progression, I have a…

0

Love Is the Consistent Remedy for My Friedreich’s Ataxia Blues – Friedreich’s Ataxia News

Life with Friedreich’s ataxia (FA) requires constant adjustment and acceptance. I have to adjust to…

0

My Idea of ‘Normal’ Is Skewed by Friedreich’s Ataxia – Friedreich’s Ataxia News

The other day, I experienced a strange moment. As usual, at the end of my…

0

The ‘Default Mode’ Is Not the Only Option – Friedreich’s Ataxia News

“Are you living by design or by default?” My friend asked me this while we…

0

Laughter Is Essential for Rare Disease Patients – Friedreich’s Ataxia News

  As many people living with Friedreich’s ataxia…

0

Healx Joins With FARA, Ataxia UK to ID Friedreich’s Ataxia Therapies – Friedreich’s Ataxia News

Healx has partnered with the Friedreich’s Ataxia Research Alliance (FARA) and Ataxia UK to combine…

0
Font Resize