ABILITY TODAY AN ONLINE RESOURCE - WHAT DO YOU WANT TO FIND TODAY?

ABILITY TODAY AN ONLINE RESOURCE - WHAT DO YOU WANT TO FIND TODAY?

Ataxia

Thankful to Get Expert FA Care for My Checkup – Friedreich’s Ataxia News

I had my annual Friedreich’s ataxia checkup last week at Children’s Hospital of Philadelphia, which hosts a…

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Waiting to Meet My New Service Dog – Friedreich’s Ataxia News

I first encountered a service dog accompanying a person with Friedreich’s ataxia (FA) three years ago. I…

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Disability activists urge people to recognise the importance of changing facilities – Leader Live

FACILITIES enabling disabled adults to get changed are a human right, a campaigner has said. A meeting was…

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New Friedreich’s Ataxia Platform Enables Collaborative Data Sharing – Friedreich’s Ataxia News

A new data-sharing platform recently launched by the Critical Path Institute’s (C-Path) Data Collaboration Center (DCC) and…

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Introducing ‘No Good Excuse,’ a New Friedreich’s Ataxia Column – Friedreich’s Ataxia News

I’m convinced that we all think we’re unique in the following regard: Something about who we are,…

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Death, My Constant Companion – Friedreich’s Ataxia News

Sitting at my computer in my room, I barely noticed that everything had gotten dimmer. It wasn’t…

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Using Both a Walker and a Wheelchair – Friedreich’s Ataxia News

“Weren’t you just in a wheelchair? Why are you using a walker now? Are you getting better?…

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How to Plan a Grassroots FA Event – Friedreich’s Ataxia News

Rare Disease Day was observed on Feb. 28. However, we don’t have to limit our advocacy to…

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I’ve Learned to Face My Reality While Hoping for an FA Cure – Friedreich’s Ataxia News

I’ve been down this road before and it doesn’t end up anywhere good. Following that thought, I swallowed…

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Being confined to a wheelchair has not stopped this Leicester globetrotter from visiting 35 countries – Leicestershire Live

Wanderlust is a strange and powerful impulse, and one that’s driven many a restless young Brit over…

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An FAer’s Reflection on Rare Disease Day – Friedreich’s Ataxia News

The theater was packed. It was unseasonably warm for February in Washington, D.C., and my Cajun blood…

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Alone We Are Rare, but Together We Are Strong – Friedreich’s Ataxia News

People around the world observed Rare Disease Day on Thursday, which gives patients, caregivers, and advocates the…

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Becoming Dependent Restored My Independence – Friedreich’s Ataxia News

One of the scariest life changes a patient anticipates upon receiving a diagnosis of Friedreich’s ataxia is…

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Cellular Therapy heals rare neurological disease Friedrich’s Ataxia – Daily Pioneer

Dr Pradeep Mahajan, regenerative medicine researcher, Adigos Stem Cells, Mumbai treated Mangal Swarnkar from Jharkhand who was…

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The Hopes and Risks of Starting a Friedreich’s Ataxia Clinical Trial – Friedreich’s Ataxia News

When diagnosed with Friedreich’s ataxia, the first things people usually ask are: “What can I do about…

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Managing Fatigue in the Workplace – Friedreich’s Ataxia News

In a given week, a full-time employee can work five days and 40 hours or more. With…

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Pioneering study could offer sun protection to patients with rare genetic disease – University of Bath

Skin cells taken from patients with a rare genetic disorder are up to ten times more sensitive…

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Respecting My Body Despite Friedreich’s Ataxia – Friedreich’s Ataxia News

I may not like my body, but I respect it. I often find myself explaining what I mean…

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Iron-induced Cell Death May Play Key Role in FA, Study Suggests – Friedreich’s Ataxia News

Iron-induced cell death may contribute to the progression of Friedreich’s ataxia, a study in human and mice…

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The Anchor on My Wheelchair from My Steadfast FA Friend – Friedreich’s Ataxia News

A small wooden trinket hangs on the back of my wheelchair. It’s a navy blue anchor with…

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