Ataxia

What My Recumbent Trike Means To Me – Friedreich’s Ataxia News

  As a Friedreich’s ataxia (FA) patient, my…

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EndFA’s Mobile App Aims to Unite FA Community, ‘Power the Cure’ – Friedreich’s Ataxia News

  The nonprofit EndFA has launched a free mobile phone and tablet app…

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Stem Cell Therapy Researchers in Australia Awarded 3-Year Grant – Friedreich’s Ataxia News

  Researchers in Australia were awarded a three-year grant to advance the…

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Potential Gene Therapy for Fridreich’s Ataxia, LX2006, Gets FDA Support – Friedreich’s Ataxia News

  The U.S. Food and Drug Administration (FDA) has given rare pediatric disease…

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Reminding Myself to Appreciate My Mobility Aid – Friedreich’s Ataxia News

As a Friedreich’s ataxia (FA) patient well along in my symptom progression, I have a…

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Love Is the Consistent Remedy for My Friedreich’s Ataxia Blues – Friedreich’s Ataxia News

Life with Friedreich’s ataxia (FA) requires constant adjustment and acceptance. I have to adjust to…

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My Idea of ‘Normal’ Is Skewed by Friedreich’s Ataxia – Friedreich’s Ataxia News

The other day, I experienced a strange moment. As usual, at the end of my…

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The ‘Default Mode’ Is Not the Only Option – Friedreich’s Ataxia News

“Are you living by design or by default?” My friend asked me this while we…

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Laughter Is Essential for Rare Disease Patients – Friedreich’s Ataxia News

  As many people living with Friedreich’s ataxia…

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Healx Joins With FARA, Ataxia UK to ID Friedreich’s Ataxia Therapies – Friedreich’s Ataxia News

Healx has partnered with the Friedreich’s Ataxia Research Alliance (FARA) and Ataxia UK to combine…

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Little Things Inspire Hope When Living With Friedreich’s Ataxia – Friedreich’s Ataxia News

The light at the end of the tunnel can seem elusive and bright at the…

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I’m Learning to See Myself as an Ataxia Warrior – Friedreich’s Ataxia News

  I’ve never thought…

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Neuro Key Booklet Gives Voice to Friedreich Ataxia Patient Stories – Friedreich’s Ataxia News

Real-life stories from people affected by Friedreich’s ataxia (FA) — featured in a new educational…

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The Beauty of Being Alone, and Why It’s Not for Me Anymore – Friedreich’s Ataxia News

  I always took pride in being…

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Crawling Toward Fitness as My Abilities Change – Friedreich’s Ataxia News

  My arms couldn’t hold my body up…

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Acknowledging My Disability Is Empowering – Friedreich’s Ataxia News

  I was diagnosed with Friedreich’s ataxia (FA)…

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‘People thought I was drunk for years’ – Living with the rare genetic condition Ataxia – Wales Online

Alan Thomas has travelled all over the world to speak about rare…

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Leriglitazone Can Prevent Ataxia Worsening in FA Patients, Top-line Data Show – Friedreich’s Ataxia News

Leriglitazone, an oral treatment candidate for Friedreich’s ataxia (FA), is well-tolerated and can significantly prevent…

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I’m Thankful for So Much, Even With Friedreich’s Ataxia – Friedreich’s Ataxia News

  2020 has been a wild year. Thanks to…

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Fearless Hearts and a Phoenix Tattoo – Friedreich’s Ataxia News

A large, old oak tree used to grow outside my bedroom window. A few weeks…

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