ABILITY TODAY AN ONLINE RESOURCE - WHAT DO YOU WANT TO FIND TODAY?

Ataxia

Adjusting School Accommodations to Meet Our Daughter’s Needs – Friedreich’s Ataxia News

One of the first things we did when we…

0420

Lab-cultured Heart Tissues Deemed Suitable to Study Friedreich’s Ataxia – Friedreich’s Ataxia News

Lab-cultured heart tissues derived from patients’ stem cells are a suitable model to study the progression of…

0577

A Plan for Parenthood: 4 Things We Considered – Friedreich’s Ataxia News

It is hard to believe that July has come and gone, and that the summer season is…

0697

FA Allows Me to See Underwater and Face Its Uncomfortable Elements – Friedreich’s Ataxia News

“I’d give all of my degrees to write as powerfully as Melville,” Dr. Cicardo mused. She had…

0858

4 Physical Therapy Strategies That Help Me – Friedreich’s Ataxia News

Since receiving my diagnosis of Friedreich’s ataxia (FA) back in 2011, I have attended two series of…

0796

Refusing to Surrender to FA: A Postcard from the Island of Misfit Toys – Friedreich’s Ataxia News

Finding a job when you are disabled is challenging. The search leads to frustration, and in my…

0833

Canine companion helps man with rare genetic disorder that leaves him confined to a wheelchair – Daily Mail

A man with a rare genetic disorder that left him wheelchair-bound has gained some independence back thanks…

01k

Iron, Copper Levels in Blood Abnormally Low in Friedreich’s Ataxia, Study Finds – Friedreich’s Ataxia News

High uptake of iron and copper by cells, caused by an insufficiency of frataxin — the protein…

0948

Breaking the System of FA – Friedreich’s Ataxia News

The first time I broke the system, I was thrilled. It was a high I’d never experienced…

01k

Excuses Keep Us from Being Ourselves – Friedreich’s Ataxia News

Last week, I had the privilege of co-hosting a panel discussion centered around living with a rare…

01k

Living a Nomad’s Life in One Place – Friedreich’s Ataxia News

My nomadic lifestyle was always something I loved about myself. For some reason, I memorized a senior…

01.1k

Methylprednisolone Shows No Clear Benefit for FA Patients in Pilot Trial – Friedreich’s Ataxia News

Treatment with methylprednisolone, an anti-inflammatory medication, had no evident benefit in children and adults with Friedreich’s ataxia…

01.1k

Excuses Keep Us from Doing the Right Thing – Friedreich’s Ataxia News

Some months ago, I went looking for a new apartment for my friend and me to rent…

01.1k

FA Patients May Benefit From MS Therapy Dimethyl Fumarate, Study Says – Friedreich’s Ataxia News

Dimethyl fumarate, an approved therapy for multiple sclerosis (MS), may help people with Friedreich’s ataxia by increasing…

01.1k

Reassessing Is Often Better than Surrendering – Friedreich’s Ataxia News

We are just about halfway through 2019. I think this is a great time to evaluate my…

01.2k

First Patient Dosed with Leriglitazone in Ongoing FRAMES Trial in FA – Friedreich’s Ataxia News

A patient with Friedreich’s ataxia has been dosed with Minoryx Therapeutics’ investigational therapy leriglitazone in the ongoing…

01.2k

Rain Won’t Stop Us from Curing FA! – Friedreich’s Ataxia News

After months of planning and executing, my family’s grassroots event, the 7th Annual Mother’s Day 5K Race…

01.2k

On FA Awareness Day, Friedreich’s Ataxia Research Advocate Is Upbeat – Friedreich’s Ataxia News

“Excited and beyond belief” is how Ron Bartek, co-founder and president of the Friedreich’s Ataxia Research Alliance…

01.2k

Wishing Away Friedreich’s Ataxia – Friedreich’s Ataxia News

Friedreich’s ataxia (FA) is a heavy diagnosis. It is a relentlessly cruel progressive disease without a treatment…

01.4k

On Being a Bridesmaid for a Day with Friedreich’s Ataxia – Friedreich’s Ataxia News

I remember feeling overjoyed and honored a year ago after I received a package in the mail….

01.5k
Font Resize