Ataxia

Reminding Myself to Focus on the Positive – Friedreich’s Ataxia News

  Focusing on the negative aspects of life always seems to come…

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Increased Education Crucial to Improving Rare Disease Care, Survey Finds – Friedreich’s Ataxia News

Healthcare providers involved in diagnosing and treating rare diseases believe that increased physician education and…

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Happiness Doesn’t Require Me to ‘Get Better’ – Friedreich’s Ataxia News

A few years back, I wrote a letter to my mom describing my perspective on…

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Taking too many vitamin D supplements? Ataxia may occur – what are the signs? – Express

You cannot overdose on vitamin D through exposure to sunlight, though you…

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I Can Still Walk in My Dreams – Friedreich’s Ataxia News

  Often I’d rather dream than face reality. I reflect on this…

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Living With a Progressive Disease Means Adapting to Change – Friedreich’s Ataxia News

In some ways, I’m probably late to the party. Like many of my friends and…

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I’ll Live With the Pity of Strangers and the Love of Loved Ones – Friedreich’s Ataxia News

I often think about the pity that is expressed to people with disabilities — people…

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New Year, New Me, and Same Friedreich’s Ataxia – Friedreich’s Ataxia News

  There is a common saying at New Year’s as people…

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Entering 2022 With a Fresh Perspective on Friedreich’s Ataxia – Friedreich’s Ataxia News

  Those who have been following my column about my journey…

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Gabapentin Relieves Vertigo of Periodic Vestibulocerebellar Ataxia: 3 Cases and Possible Mechanism – Wiley

In their article, Coin and Vance describe improvement of optokinetic-triggered vertigo (OKTV) in periodic vestibulocerebellar…

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Friedreich’s Ataxia Researchers Invited to Apply for Available FARA Grants – Friedreich’s Ataxia News

The Friedreich’s Ataxia Research Alliance (FARA) has announced upcoming deadlines for its grants program —…

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Researchers Make New iPSC Models of Friedreich’s Ataxia – Friedreich’s Ataxia News

A team of scientists at Koc University in Turkey has created three new cell models…

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The Parallels Between Living With FA and Riding My Trike – Friedreich’s Ataxia News

  After I was diagnosed with Friedreich’s ataxia…

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CSF Biomarkers Characterized in Patients With Fragile X-Associated Tremor/Ataxia Syndrome – Neurology Advisor

Changes in proteins that were previously found to have important roles in…

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‘United Against Ataxia Hill Day’ Is a Virtual Advocacy Event – Friedreich’s Ataxia News

The third United Against Ataxia Hill Day will take place virtually Sept. 29, an event…

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Taking Another Friedreich’s Ataxia Setback in Stride – Friedreich’s Ataxia News

Despite using a walker 24/7, taking my clinical trial study treatment daily, getting ample rest,…

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Patient suffering from Friedreich Ataxia regains mobility with the aid of smart technology – ZAWYA

Sheikh Khalifa Medical City (SKMC), part of Abu Dhabi Health Services Company (SEHA) – the…

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‘Day Undefined’ Website Helps Patients Locate Adaptive Products – Friedreich’s Ataxia News

Liam Dougherty, who has Friedreich’s ataxia (FA), and Katelyn Leader, whose sister has an undiagnosed…

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Planning for Tomorrow Is Worth the Effort Today – Friedreich’s Ataxia News

It seems that the best time to plan ahead is always yesterday, or several hours…

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Neurodegenerative diseases, nanoparticles slow down Friedreich’s ataxia – Emergency Live

Friedreich’s ataxia is a neurodegenerative disease caused by an abnormality in the gene that codes…

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