Ataxia

Crawling Toward Fitness as My Abilities Change – Friedreich’s Ataxia News

  My arms couldn’t hold my body up…

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Acknowledging My Disability Is Empowering – Friedreich’s Ataxia News

  I was diagnosed with Friedreich’s ataxia (FA)…

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‘People thought I was drunk for years’ – Living with the rare genetic condition Ataxia – Wales Online

Alan Thomas has travelled all over the world to speak about rare…

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Leriglitazone Can Prevent Ataxia Worsening in FA Patients, Top-line Data Show – Friedreich’s Ataxia News

Leriglitazone, an oral treatment candidate for Friedreich’s ataxia (FA), is well-tolerated and can significantly prevent…

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I’m Thankful for So Much, Even With Friedreich’s Ataxia – Friedreich’s Ataxia News

  2020 has been a wild year. Thanks to…

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Fearless Hearts and a Phoenix Tattoo – Friedreich’s Ataxia News

A large, old oak tree used to grow outside my bedroom window. A few weeks…

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Progressing Through Friedreich’s Ataxia With a Healthy Perspective – Friedreich’s Ataxia News

Kendall and her family are a cast of characters on Halloween. (Courtesy…

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I Feel Both Pride and Envy While Parenting With Friedreich’s Ataxia – Friedreich’s Ataxia News

  I…

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4 Cutting-edge Projects on Friedreich’s Ataxia Chosen for AIM Awards – Friedreich’s Ataxia News

The Friedreich’s Ataxia Research Alliance (FARA), the CureFA Foundation, and fara Australia are supporting four…

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A Realistic Approach to Fitness With Friedreich’s Ataxia – Friedreich’s Ataxia News

  Because I’m transparent about my life journey with…

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Ataxia UK Funds Work Into Replacing or Enhancing Frataxin in Cells – Friedreich’s Ataxia News

Ataxia UK has awarded a £26,000 grant to advance research into compounds that can replace…

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Let’s ‘Walk and Roll’ With Our Mobility Devices – Friedreich’s Ataxia News

  As my Friedreich’s ataxia (FA) symptoms progress,…

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What I Would Tell Someone Newly Diagnosed With FA – Friedreich’s Ataxia News

This September, I participated in a social media campaign to raise awareness for ataxia. Those who participated had to post a photo every…

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Alternative Treatments for Friedreich’s Ataxia: Cupping and Me – Friedreich’s Ataxia News

  It wasn’t a comfortable feeling. With every press of…

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‘Behind the Mystery: Rare and Genetic’ TV Show Brings Focus to FA Challenges – Friedreich’s Ataxia News

Lifetime TV‘s October 2 special edition of “Behind the Mystery: Rare and Genetic” focuses on Friedreich’s…

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I Have a Strange Relationship With Adrenaline – Friedreich’s Ataxia News

  In my humble, nonmedical opinion, adrenaline is an…

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Ixico joins Friedreich’s Ataxia research consortium – ShareCast

Data analytics company Ixico has entered into a five-year collaboration with the Friedreich’s Ataxia Research…

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Is Friedreich’s Ataxia a Form of Muscular Dystrophy? – Friedreich’s Ataxia News

MAYOPATHY Institute of Muscular Dystrophy & Research Center, Tirunelveli, TamilnaduFrom Wikimedia…

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Gene therapy used to overcome the cardiac effects of Freidreich’s ataxia – News-Medical.net

Gene therapy was successfully used to overcome the cardiac effects of Freidreich’s ataxia (FA) in…

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Using AI and fractal dimension to accurately monitor ataxia – News-Medical.Net

Exploiting artificial intelligence (AI) to develop tools for improving the monitoring of treatment of rare,…

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