Caring for Patients With Duchenne Muscular Dystrophy During COVID-19 Pandemic – Neurology Advisor

Although emerging data suggests that COVID-19 may not be as severe as previously anticipated for patients with neuromuscular disorders, experts emphasized the need for patients to heed public health guidelines on protective measures against the virus.

 
The coronavirus disease 2019 (COVID-19) pandemic resulted in widespread disruptions in care for patients with ongoing medical needs. To reduce the risk of virus exposure, many healthcare settings began offering nonurgent services via telemedicine or rescheduling in-person visits for a later date. These shifts in care have prompted concerns regarding the potential effects of treatment lags for patients with neuromuscular conditions including Duchenne muscular dystrophy (DMD).1,2

In a paper published in May 2020 in Muscle and Nerve, an expert panel of neuromuscular specialists provided consensus recommendations to guide the care of this population during the current global crisis.1 Although emerging data suggests that the course of COVID-19 may not be as severe as initially anticipated for patients with pediatric neuromuscular disorders, the panel emphasized the need for patients and their families to heed current public health guidelines regarding protective measures against the virus, including social distancing practices.1,3

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