There are calls for more to be done to improve the lives of people with motor neurone disease. The devastating muscle wasting condition will kill a third of those who have it within a year.
Granada spoke to John Boulton from Sale who told us equipment can take too long to reach those who desperately need it. The 77 year old can no longer use his voice but told us his story through a computer.
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To combat the problem the MND association have devised a charter they want councils to sign up to as a commitment to better care for those with the condition. They say it's very much a collaborative process with local authorities and understand financial pressures on health and social care budgets.
But so far in the North West only around 20% of councils have signed up. Chris James the director of external affairs at the the MND association told Granada the difficulty with the illness is that it's rare and "doesn't get the attention some other conditions have locally."
Read more about the charter and how you can get involved here.