Brave Kilkenny mum reveals ‘miracle’ son’s battle with brittle bone disease – Irish Mirror

A brave single mum has told how her miracle baby born with a rare brittle bone disease is her reason for getting out of bed.

Kilkenny toddler Jaxon Jordon, 14 months, attends Crumlin Hospital because he has osteogenesis and his mum Amy also attended Crumlin for many years after being diagnosed with the same illness at age two.

Amy has broken over 70 bones and told how her own journey with the condition means she’s able to help Jaxon cope with this debilitating illness.

Amy, 29, told the Irish Mirror how doctors didn’t think she’d survive after Jaxon was born via C-section.

She said: “When I was pregnant with Jaxon my spine fractured, so I was in Holles Street for two months before I had him, I had a section and I was on a lexa machine for two days as they thought I wasn’t going to make it.

“He’s my one and only and it was a miracle that I made it as far as I did.

“It’s really hard to get out of bed every day but he makes me.”

As well as continually breaking bones, living a life of pain is the plight of the illness.

She added: “I’ve had so many breaks in my life so far and thank God Jaxon has had none yet.

“Our bones are thicker than most people’s bones but a lot more brittle, it’s a collagen mutation.

“I’ve been suffering every day, painkillers and broken bones, when I was younger I was constantly in casts.

Read more at: https://www.irishmirror.ie/lifestyle/family/osteogenesis-brittle-bone-disease-waterbabies-14320686

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