As of today, the status of Friedreich’s ataxia (FA) has changed from untreatable to treatable, thanks to the approval of Skyclarys (omaveloxolone) by the U.S. Food and Drug Administration (FDA).
I still find it unbelievable that FA has a treatment. I’m reminded of high school, when one of my classmates showed up with his foot in a cast, hobbling on crutches. I was strangely jealous that this crutch-dependent guy would eventually get better. Even though most high school bodies tend to repair themselves, maybe with the help of a cast or some crutches, there was nothing I could do to prevent my getting worse. After all, FA, then, was untreatable.
But today, some 20 years later, there is an approved treatment. My teenage pessimism is slowly being replaced by optimism.
Read more at: https://friedreichsataxianews.com/columns/patients-perspective-1st-friedreichs-ataxia-treatment-skyclarys/
