Are there curbs or cutouts? How many stairs are there? Is there an elevator? Is there space for multiple power chairs? How big is the bathroom? How far is the parking lot from the entrance?
What do all of these concerns have in common? Unfortunately, they’re things I never paid attention to before becoming a mom to three sons with Duchenne muscular dystrophy (DMD).
When my sons were diagnosed in 2011, our world was flipped upside down. It was like we woke up as one version of our family and went to bed as another. We’d finally learned why our boys had big calf muscles and couldn’t walk far without tiring. Everything changed once we were living with Duchenne. Things I’d never thought about before became part of every daily decision I made as a caregiver.
Read more at: https://musculardystrophynews.com/columns/4-things-never-worried-about-before-living-duchenne-muscular-dystrophy/
