Brittle Bone Disease

The first Asian Woman Festival is happening in the UK and it’s open to all – Metro

There aren’t a lot of platforms dedicated solely to celebrate the achievements, journeys, and experiences of Asian…

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Turning stem cells into bone with nanoclay-reinforced hydrogel – Phys.org

Assistant Professor Alireza Dolatshahi-Pirouz and colleagues have developed a hydrogel that combines synthetic materials with living cells,…

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Train firm offers disabled passengers assistance booking system using voice commands – Wigan Today

A rail operator has launched a new service allowing disabled passengers to book travel assistance using voice…

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Fragile bones, life in wheelchair; Shilpa fights destiny by rewriting own story – Mathrubhumi English

Shilpa is rewriting her own destiny by writing stories every day. Though her life is confined to…

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‘He’s made of glass’ Mother’s heartbreak after fragile baby breaks bones in WOMB – Express

Loni Osborne was advised to have an abortion after Theo was diagnosed with brittle bone disease 20…

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This little girl has had to learn to walk 4 times while battling brittle bone disease – All4Women

A mum has told how she has watched her five-year-old daughter learn to walk four times due…

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Linguist Rachel asks date Michael to take clothes off in Spanish – Daily Mail

The Undateables returned for a new series last night and viewers were left in hysterics as budding…

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How A Wheelchair-Bound DJ Uses Music To Rise Above His Disability, One Beat At A Time – India Times

Rupesh sits in his wheelchair, in front of the desktop, his eyes fixed on the big screen…

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Chris Evans teams up with Max Edney for ChrisMax event – Basingstoke Gazette

A SIX-year-old from Old Basing has won the hearts of a nation after appearing on a breakfast…

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Friendly bacteria can boost bone density, study shows – BreakingNews.ie

Treatment with friendly bacteria widely used in probiotic supplements can strengthen bones, a study has found. Healthy mice…

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Disabled people must be able to express our sexual needs. Our health depends on it – Metro

Sex. We all know what it is — and when most of us think of it we…

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Following in Serena Williams’ footsteps, Jordanne Whiley gears up for pregnancy return – Metro

In many ways, Jordanne Whiley’s career is following the same path as Serena Williams. Both have won…

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Disabled train passenger is left stranded 11 miles from his home because no staff were available to help him get off at the right station – Daily Mail

A wheelchair used was stranded 11 miles from his home after a lack of staff meant he…

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Severely disabled train user stranded 11 miles from home by ScotRail due to lack of staff – Scottish Daily Record

A disabled wheelchair user was stranded 11 miles from home – because no railway staff were available…

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‘Northern Ireland is the safest place to be if you are an unborn baby who has a disability… and in terms of Brexit I’m glad Arlene Foster is holding firm to get the best deal’ – Belfast Telegraph

Lord Kevin Shinkwin (Baron Shinkwin) is one of the UK’s foremost campaigners for the rights of the…

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Egyptian doctor successfully conducts first-of-its-kind spinal surgery – Egypt Independent

Al-Azhar University’s Hany Abdel Gawad has successfully conducted one of the most advanced surgeries in his field,…

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How three Chinese sisters with brittle bone disease defy disability stereotypes – CGTN

Three sisters in rural southwest China diagnosed with brittle bone disease are defying disability stereotypes and overcoming…

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Stranded disabled ScotRail user deserved better – an apology won’t cut it this time – Scottish Daily Record

Richard Toner has fought the odds all his life. He wasn’t expected to survive birth. Doctors didn’t give…

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Disability advocate Quentin Kenihan, – who suffered hundreds of broken bones – dies suddenly at the age of 43 from a suspected asthma attack – Daily Mail

Beloved entertainer, disability activist, and politician Quentin Kenihan has died suddenly at the age of 43. Nicknamed the…

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Five-year-old girl who has suffered 90 broken bones because of rare genetic condition bravely goes SURFING with her dad – and stuns parents when she emerges without a single fracture – Daily Mail

A five-year-old who has suffered 90 broken bones in her short lifetime due to a genetic disorder…

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Don’t call me ‘inspiring’ just because I’m in a wheelchair: Activist Samantha Renke reveals the word makes her ‘toes curl’ – because it implies being disabled is a ‘worst possible scenario’ – Daily Mail

An activist with a rare brittle bone disease has revealed why she hates being called an ‘inspiration’…

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Sisters with disability in China make a living by singing in live-stream videos – INQUIRER

Three sisters have garnered a huge following — 260,000 fans, to be exact — after finding their…

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Brittle bone disease won’t stop this teen. How you can help her take the driver’s seat – Centre Daily Times

Dale Dyke’s bedroom is going through an awkward phase. Located just down the hall from the kitchen,…

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Bedale resident sets herself a year of challenges for Brittle Bone Society – Darlington and Stockton Times

A FORMER Bedale resident is helping a charity which has played a major part in her life…

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Record-breaking donation to Brittle Bone Society made by determined fundraiser – Basingstoke Gazette

THE record-breaking efforts of a fundraising dad will help further medical research into an incurable disease. Having set…

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9-year-old with brittle bone disease lights up with joy after getting tiny red Porsche and a Bruno Mars-themed birthday – Meaww

Little Benjamin Ganding’s ninth birthday turned into a heartwarming moment for those present, as the young boy’s…

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Vitamin D—a pseudo-vitamin for a pseudo-disease – Medical Xpress

We are still in love with vitamins a century after they were discovered, with half the US…

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Identical twins who missed two years of school while fighting chronic bone disease are going to university – Wales Online

It has been a long journey for identical twins Abigail and Rebecca Smith to get to their…

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This 3-year-old boy with brittle bone disease can’t stop smiling even after surgery – Yahoo News

Byron Baxter may be only 3, but the boy has quite the A-list group of “cyber aunts…

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Deaf pensioner afraid to leave home now walking with confidence thanks to hi-tech bunnet – Scottish Daily Record

A deaf pensioner ­struggling to go out alone in case he wanders into the path of a…

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Brittle bone disease: Young adults could soon be screened DECADES before symptoms appear – Express.co.uk

A device has been developed that identifies 899 tiny bits of DNA linked with the devastating condition…

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Broken bones could heal better, faster thanks to Shriners Hospital discovery – CTV News

A team at Shriners Hospital for Children in Montreal has made a discovery that could lead to…

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Disability campaigner Samantha Renke reveals she’d consider having a designer baby to avoid passing on the ‘extremely painful’ brittle bone disease that has confined her to a wheelchair – Daily Mail

The disabled actress Samantha Renke has said she would consider having a designer baby when she starts…

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TENNIS: Jordanne Whiley sets sights on comeback after pregnancy – Oxford Mail

JORDANNE Whiley is enjoying every minute of motherhood but admits she cannot wait to be back on…

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Royal visit to mark Bath charity Designability’s 50 years – Somerset Live

A Bath charity is set to showcase 50 years of its work this week when Prince Edward…

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What is Osteogenesis Imperfecta and what are the symptoms of Samantha Renke’s type of brittle bone disease? – The Sun

OSTEOGENESIS Imperfecta is a genetic condition that is present from birth. But what are the symptoms and how…

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Wish come true: 11-year-old celebrates birthday in Disney – News Courier

For the last 38 years, the Make-A-Wish Foundation has granted wishes to children with life-threatening conditions like…

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Disabled musician seeks to break norms in the music industry – Citizen

The positive and confident Thabo Mashaba wants to inspire other people living with disabilities and give them…

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Actor Samantha Renke Slams Zara After Staff Refused To Help Her Reach Card Machine – HuffPost UK

The actor Samantha Renke has slammed Zara for not educating its staff on how to assist disabled…

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Pupils raise funds for Lizzie Williams’ Paralympic journey – West Sussex County Times

Arunside Primary School in Horsham welcomed local paralympic athlete, Lizzie Williams, to the school. Lizzie is a…

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North Devon charity gives severely ill and disabled youngsters trip of a lifetime – Devon Live

Children with serious illness or major disabilities have had a trip of a lifetime in the USA…

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Mom, son with disabilities face daunting challenge of fleeing advancing lava – Hawaii News Now

The Big Island is working with a nonprofit to move 11 tiny, temporary structures onto a 14-acre…

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Meet this Kerala girl who battles brittle bone disease inspiring others – The New Indian Express

Latheesha Ansari is 2 feet tall and weighs only 14 kg, but that does not mean she…

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Could a drug designed for brittle bone disease provide a miracle cure for bald men? Scientists discover it can help hair grow 2mm in just 6 DAYS – Daily Mail

A drug designed for brittle bone disease has provided hopes of a cure for men with male…

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New Jersey Boy With Brittle Bone Disease Surprised With Music Studio After Viral Eminem Cover – NBC New York

A New Jersey teenager who has wowed the world with his musical talent — including a viral…

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How long should a severely disabled child have to wait for a wheelchair in Ireland? – The Irish Times

In January, the Irish Government committed to formally ratifying the UN Convention on the Rights of…

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The ‘china doll’ boy: Six-year-old, who has broken his bones more than 500 times, suffers fractures even hugging his siblings or smiling at his mother – Daily Mail

A ‘china doll’ boy has suffered more than 500 fractures in his short life. Reiko Quinlan, six, from…

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Brittle Bone Society fundraiser led by father whose son has the condition – Basingstoke Gazette

FROM Basingstoke to Manchester with a bone in hand, runners raised more than £2,000 for charity. As part…

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A spirit that refuses to break: Krishnapriya does not let brittle bones beat her dreams – Manorama Online

“What good is it studying any further? I am going to stop going to school, doctor.”; Lakshmi…

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Steven Edney’s 12 challenges in 12 months effort for Brittle Bone Society – Basingstoke Gazette

AFTER his son was diagnosed with a rare condition which affects just one in 15,000 people, Steven…

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The little girl who lives like a porcelain doll: Mother of five-year-old who has rare disease that causes brittle bones admits she lives in constant fear that her brave daughter ‘is going to break’ – Daily Mail

A mom says her five-year-old daughter is like a ‘porcelain doll’ because her bones are so fragile…

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Five-year-old girl suffers from brittle bone disease in Pennsylvania – Daily Mail

Five-year-old girl Sabrina Lewis has osteogenesis imperfecta and has dwarfism is so fragile that her mom, Michaela…

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The 17-month-old boy dubbed a ‘China doll’ because he broke a rib while in the womb and can break a bone just by SNEEZING – Daily Mail

An infant has been dubbed a ‘real life China doll’ because he is so fragile that he…

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YouTube channel Real Stories gets 1 million daily YouTube views – Digiday

Digital content studio and broadcaster Little Dot Studios started by making TV content work on YouTube. Now,…

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Workshop gives special-needs children a chance to dance with real-life ballerinas – ABC News

Sarai Arce loves to dance. The 6-year-old loves the poses. Dancing, she said, makes her “happy.” When Sarai…

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6-Year-Old Girl with Brittle Bone Disease Finds Herself in Special Dance Class – Inside Edition

Sarai Arce suffered six fractures at the time of her birth and a skull fracture when she…

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TENNIS: Pregnant Jordanne Whiley eyes November return and sets Tokyo 2020 goal – Oxford Mail

OXFORDSHIRE’S newest sporting star has set a date for her comeback as she awaits the birth of…

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6-Year-Old With Brittle Bone Disease Learns Ballet, Thanks to a Special Needs Dance Class – NBC4i.com

A 6-year-old with a brittle bone disease is a ballerina, thanks to a special dance class. “I like…

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New rock group seeks to raise understanding of rare disease sufferers – Global Times

An original new rock band has become the voice of people who suffer rare diseases, using music to call for understanding and respect…

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Access to Work claimant says Government thinks disabled people cost too much – Care Appointments

Disabled people are seen as a burden on society “because the Government thinks we cost too much money”, an Access to Work claimant…

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New brittle bone test to end hip break agony for thousands – Express.co.uk

A REVOLUTIONARY new screening test for brittle bone disease could prevent thousands of women suffering the agony of hip fractures each year. The simple…

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Disabled people explain why they’re furious Philip Hammond blames them for slow economy – iNews

Disability rights campaigner Shani Dhanda has called for Chancellor Philip Hammond to be sacked over “shameful” comments blaming disabled people for the UK’s…

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Woman who applied for 100 jobs finally got interview after hiding her disability – The Independent

Many people are worried about telling their employer about a disability, research has revealed, and one woman who applied for hundreds of jobs…

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Pop superstar Olly Murs helps to grant wishes to seriously ill children for Christmas – Manchester Evening News

Olly Murs Helps Grant wishes to seriously ill Children Pop star Olly Murs brought smiles to the faces of eight seriously ill children at…

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National Child Day: McGill Nursing research helping to improve quality of life of children with brittle bone disease – McGill Reporter

National Child Day falls on November 20 each year in Canada, to commemorate the United Nations’ Convention on the Rights of the Child,…

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500 broken bones doesn’t slow down this talented wildlife artist – WGNO

Katherine Klimitas was diagnosed with brittle bone disease just two weeks before being born. Brittle bone disease, or osteogenesis imperfecta, is a disorder that…

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Physio assistant uses her own experience to highlight brittle bone disease to researchers – Chartered Society of Physiotherapy

Charlotte Proud was born with brittle bone disease. But, she told a recent conference on rare diseases, that has not stopped her holding…

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Air pollution exposure linked to brittle bone disease – Daily Mail Online

Air pollution could cause brittle bone disease, according to new research. A study by Columbia University’s Mailman School of Public Health that analyzed data…

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Woman told to remove disability from CV after being rejected from 100 jobs – Plymouth Herald

A woman measuring 3ft 10ins has revealed she was advised to remove her disability from her covering letter of her CV after she…

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Walsall woman rejected from 100 jobs after disclosing disability – Express And Star

Shani Dhanda failed to get a single interview after sending out heaps of covering letters revealing she suffered from life-limiting brittle bone disease. But…

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Disabled People ‘Being Turned Down For Jobs Due To Their Condition’, Scope Research Finds – HuffPost UK

Disabled people are being turned down for jobs because of their condition, with one woman failing to get an interview for a job…

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Connections: How “self-direction” enables people with disabilities to live more independent lives – WXXI News

An emerging model called self-direction is enabling people with disabilities to live more independent lives. Self-directed individuals choose where they live, they design…

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Doctor’s Orders: Don’t Become Vitamin D Deficient This Winter – Observer

Vitamin D, nicknamed the “sunshine vitamin,” is essential to maintaining our health and immune system. As you might have guessed, the main source…

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Samantha Renke Bursts Into Tears After Broken Wheelchair Leaves Her Stranded In Own Home – HuffPost UK

Samantha Renke was reduced to tears in the latest episode of ‘New Activists’ after her wheelchair broke and engineers failed to provide her…

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Disability Hate Crime Reports Surge, And Campaigners Think Media Portrayals Has ‘Demonised’ People – HuffPost UK

The media’s portrayal of disabled people as “scroungers” who are on benefits has helped fuel the rise in reported hate crimes, campaigners have…

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First steps for brittle boned baby – RTN Newspaper

OLAYA, the little girl from Javea who was born with brittle bone disease is reported to be responding well to treatment at the…

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This 90% Disabled Man Is a Singer, Graphic Designer and Motivational Speaker! – The Better India

Sai Kaustuv Dasgupta has suffered more than 50 fractures. A rare bone disorder called Osteogenesis Imperfecta, also known as ‘brittle bone disease’, afflicts…

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Queensferry Crossing: Queen to cut ribbon on new bridge – The Scotsman

Excited school children eagerly waved Saltires and whispers of “she’s here” caught the wind on the southside of the Queensferry Crossing yesterday as…

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The nun who prayed and made me walk – BBC News

It was the summer of 2011, and my family and I were on holiday in Paris. I know it was 2011, because it…

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Brittle Bone Disease Didn’t Stop This Little Boy From Becoming A Power Ranger – Scary Mommy

Six-Year-Old Conner starred in his own Power Ranger movie. Conner Goldhammer is like a lot of little boys. He likes to swim and play…

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Bone disease traced to the Middle Ages – Medical Xpress

The special form of the bone disease osteopetrosis that exists in Västerbotten is due to a gene mutation that can be traced back…

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Osteoporosis doesn’t just affect women. It’s also a man thing. – The Bolton News

ALTHOUGH osteoporosis (or brittle bone disease) is well known and lots are being constantly written in the popular press all the time, the…

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Types of Osteogenesis Imperfecta (OI) / Brittle Bone Disease – News-Medical.net

Brittle bone disease or Osteogenesis Imperfecta (OI) is characterized by a fragile skeleton. The mutation in the genes, COL1A1, COL1A2, CRTAP, and P3h2…

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Chronic pain patients say opioid crackdown is hurting them – Alaska Dispatch News

Jim Watkins lives with pain so intense it can snatch his breath away. He has osteogenesis imperfecta, also known as brittle bone disease,…

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Dubai To Cambodia – A Short Film By Mitch St. Pierre

This is a short film made by Disability Today’s friend and fellow adventurer Mitch. Mitch has brittle bone disease but its never stopped him…

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Pool offers a safe sport – Shepparton News

Osteogenesis imperfecta, more commonly known as brittle bone disease, is a chronic illness that affects the skeletal system, causing bone fractures and breaks…

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Anna Periquet: ‘Osteoporosis may break my bones but not my spirit’ – Philippine Star

Anna Marie Periquet glides into the room like a graceful ballerina that she is. Who would ever think that the pixie, sprightly Anna,…

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This Mumbai-based organisation is making travel easy and accessible for differently-abled people – YourStory.com

Umoja believes that better accessibility begins with awareness and changing minds People with special needs or differently abled often find it difficult to move…

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Leyland mum to do abseil for Manchester Children’s Hospital – Lancashire Evening Post

Back left to right Kath Balshen and Jemma Salkeld.Front row left…

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Girl, 6, has broken EVERY bone in her body and ‘breaks in the wind’ due to rare bone disease – The Sun

FRAGILE Zoe Lush has broken nearly every bone in her body at just six-years old. Little Zoe suffers from a rare condition that means…

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This story of 78-year-old grandma taking care of a girl with brittle bone disease will reaffirm your faith in humanity – The Indian Express

The loving grandmother carries the little child on her back every day….

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Granny accompanies girl with brittle bone disease to study – ecns

Li Xianju, 78, helps her granddaughter Nana to study at Fenghuang Elementary School in Kaizhou District, Southwest China’s Chongqing Municipality. Eight-year-old Nana suffers…

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Mereo BioPharma to raise £15m to develop brittle bone disease treatment – DigitalLook

Mereo BioPharma Group is planning to raise up to £15m to support development its brittle bone disease treatment following its acceptance to participate…

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Wish granted for 8-year-old with brittle bone disease – RTV6 – WRTV Indianapolis

INDIANAPOLIS – While many students are making plans for…

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Young Jack reveals the struggle of living with brittle bone disease – Evening Telegraph

The smallest of touches, a sudden turn in direction or a tiny slip can be enough for Jack Lewington to hear a tell-tale…

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Tory peer Lord Shinkwin warns Britain’s abortion laws are a ‘licence to kill disabled people’ – Telegraph.co.uk

A Conservative peer has described…

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Music matters: Choosing the violin over walking – BBC News

Violinist Gaelynn Lea chose her musical craft over surgery which might have changed her life, but it is a decision she does not…

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Wheelchair-bound woman desperate for a place to stay with dying pet – Stuff.co.nz

Life has dealt Diane Wells some serious blows – brittle bone disease and cerebral palsy – but it…

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Brittle Bone Disease Causes Mum And Twin Daughters To Break 100 Bones Between Them – Huffington Post UK

A mum and her twin daughters have fractured more than 100 bones between them because of a hereditary health condition. Jill Williams and her…

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New trial for people with brittle bone disease – BBC News

People with a rare bone…

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Protein in womb plays lifelong role in bone health, study of mice shows – Science Daily

(L to R) Laura Schulz, Ph.D., associate professor of obstetrics, gynecology and…

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Teen with brittle bone disease is a viral singing sensation – WGN-TV

Sparsh Shah, 12, also known as “Purhythm,” has been making rap music at his home in New Jersey, which people are LOVING online. Sparsh…

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Healthy Bones Tips: 7 Best Foods That Can Make Your Bones Strong – Parent Herald

Having healthy bones can make you conquer the grinds of everyday living. To make your bones healthy you must have a daily dosage…

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Boy with brittle bone disease covers ‘Not Afraid’ – 9NEWS.com

A 12-year-old with osteogenisis imperfecta — known as brittle bone disease — has posted a cover of Eminem’s “Not Afraid” that has gotten…

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Dhanya Ravi has suffered over 300 fractures in 25 years due to brittle bone disease – Daily Mail

Her bones are so brittle that Dhanya Ravi breaks one just by getting out of bed in the morning. And when she breaks…

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10-Year-Old Girl With Rare, Crippling Bone Disease Now Surfs … – People Magazine

“We had an ultrasound and minutes after we got to be excited about having a girl, they told us something was wrong,” the…

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Memorial service set for 15-year-old Tristin Hurley – Reno Gazette Journal

A week ago,Tristin who has brittle bone disease fell and broke his arm and hip. He had surgery on Friday at Saint Mary’s…

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Violinist Overcomes Bone Disease To Win NPR’s Tiny Desk Contest – CBS Local

Gaelynn Lea, 32, overcame a congenital disorder known as brittle bones disease. To play a violin, she has to hold it like a…

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The Unique Gift: Evansville Toddler Wants Cards for Birthday – Tristatehomepage.com

A little girl and her mother, suffering from a rare bone disease, with a unique birthday wish. The pair are among 100 in…

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‘Cancer appears to have gone’: Relief for family of schoolboy Sam Amess ‘who never complained’ – Hull Daily Mail

Sam, who also has brittle bone disease, is now enjoying spending time with his friends. “To look at him now, you wouldn’t think…

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And The Winner Of The 2016 Tiny Desk Contest Is … – NPR

Gaelynn was born with brittle bone disease, a congenital disability that makes playing the violin tucked tightly under the chin not a comfortable…

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Frontline Doctors: the migrant crisis seen through doctors’ eyes – review – Telegraph.co.uk

There was Qusai, a brittle bone disease sufferer from Syria who was charged double for his crossing from Turkey because his wheelchair occupied…

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Gangster George ‘Dode’ Buchanan issues threat to robber who stole from his frail mother – ‘He’s in serious trouble’ – Scottish Daily Record

Drugs baron Buchanan, who most recently completed a five-year sentence for peddling heroin, said: “My mother’s disabled with osteoporosis and brittle bone disease….

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Boy whose wheelchair was stolen dies – 13newsnow.com

The genetic disorder, commonly called brittle bone disease, caused Tristin to break bones easily. He started using a wheelchair full time when he…

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Violinist Overcomes Bone Disease To Win NPR’s Tiny Desk Contest – Valley News Live

Gaelynn Lea, 32, overcame a congenital disorder known as brittle bones disease. To play a violin, she has to hold it like a…

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Antidepressants Linked to Tooth Implant Failure – HealthNewsDigest.com

Additional side effects of the drug include osteoporosis, a condition in which bones become weak and brittle; akathisia, a disorder characterized by the…

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UPDATE: Boy whose wheelchair was stolen died Sunday morning. – Reno Gazette Journal

Justin, 14, said he spoke with Tristin’s brother this morning but didn’t have many details on what happened. Tristin was born with the…

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Living the ‘normal life’ despite medical challenges – News-Press Now

Twenty-four-year-old Katherine Lacina, right, was diagnosed with Unverricht–Lundborg Syndrome, an inherited form of epilepsy. On a Friday evening last month, she worked with…

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Sparks family asks for the return of teen’s custom wheelchair – KRNV My News 4

With no leads to follow, Tristin Hurley and his mother are hoping that whoever took it will give it back. Tristin has osteogenesis…

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Glucose-guzzling immune cells may drive coronary artery disease – Stanford Medical Center Report

Hyper-aggressive immune cells parked in arterial plaque and bingeing on glucose appear to be major drivers of coronary artery disease, Stanford University School…

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Scientists hatch a plan for future superchickens – BDlive

It also wants to produce high-quality, disease-free eggs, while satisfying consumer demand for better animal welfare. The long-term … for strong bones. Now…

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Salt Lake theater finds the action in animated storytelling – Salt Lake Tribune

(Steve Griffin | The Salt Lake Tribune) Salt Lake Acting Company’s Robert Scott Smith during rehearsal for the acting company’s production of “Climbing…

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Traveling overseas for a liver – Castanet.net

Together the couple were busy raising their three children, Aidan, 10, Laila, 7, and Shae, aged 4, who lives with Osteogenesis Imperfecta, the…

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Okanagan man flies Thursday to Hong Kong for new liver – The Daily Courier (subscription)

Mike Watson, who works in the Okanagan wine industry, has a failing liver and is rushing to Hong Kong Thursday to get a…

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Climbing With Tigers and the Salt Lake Acting Company – Good4Utah

This charming story is based on the book by 9-year-old Nathan Glad who was born with Osteogenesis Imperfecta (brittle bones disease) and Dallas…

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Healing the unborn – Scienceline

Brittle bone disease occurs at a rate of about one case per 20,000 births (according to Healthline), resulting in fragile, easily-broken bones. It’s…

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I’ve had over 300 fractures in 25 years: Meeting people with rare diseases – The News Minute

On the fifty-eighth day after her birth, doctors diagnosed the infant with osteogenesis imperfecta or brittle bone disease, a rare condition where the…

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Houston’s first rare disease day debuts at the health museum – Baylor College of Medicine News (press release)

Of the thousands of rare disorders that are diagnosed in childhood, some of the top rare diseases include Velocardiofacial/DiGeorge Syndrome, Fragile X Syndrome,…

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Camilla awarded honorary degree for work on bone condition – Daily Mail

The Duchess went on to work for many years to promote understanding and raise awareness of osteoporosis, a devastating brittle bone disease, and…

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Moin Junnedi from India who has Brittle Bone Disease has become a swimming champion – Daily Mail

An Indian teenager who has never been able to stand has become a champion swimmer with his eyes set on Paralympic gold. Moin…

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Ellesmere Port girl with brittle bone disease inspiring Cheshire Phoenix star on and off the court – ChesterChronicle.co.uk

Born with brittle bone disease, Millie Simpson had broken 30 bones while she was in the womb and her parents Stevie and Tyler…

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Woman with rare brittle bone disease raising money to see out-of-state specialist – MLive.com

Her legs cannot support her tiny frame and discs slip against each other at the base of her spine. Most of the time,…

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Mom of E. Texas boy with ‘brittle bone disease’ explains struggles he faces – KLTV

An East Texas family is raising a child with a frightening physical condition. His bones are so weak that they break at the…

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Fundraiser held for 7YO with brittle bone disease – Fox 2 Detroit

Amere is 7-years-old but looks like a toddler because he suffers from a brittle bone disease called Osteogenesis Imperfecta which his mother says…

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12-year-old with brittle bone disease shaving his head in support of others – 660 News

660 News He’s spent much of his life attending the Alberta Children’s Hospital for his own disease and now he’s looking to give back….

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Stem cell trial to help brittle bone disease babies – Leicester Mercury

Leicester Mercury Researchers from the University of Leicester are taking part in a pioneering study involving the transplantation of stem cells into babies in…

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Could Brittle Bone Disease Be Cured? – BBC News

BBC News Brittle bone disease comes in various forms – but at its most severe, the effects can be devastating. For example, one baby…

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Marie Andrews with brittle bone disease has ‘miracle’ child thanks to surrogate – Daily Mail

Toddler Mark Andrews bends down and tenderly kisses the top of his mother’s head – because at 19 months old he already towers…

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